moving...looking for neurologist - My MSAA Community

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moving...looking for neurologist

bonbimi profile image
bonbimi
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I am in the process of moving from NY to Port St Lucie, Fl. I would love to hear from anyone about neurologists in the area. I'm willing to travel about 50 miles to find someone. I'm pretty knowledgable in MS and would love a doctor who is willing to prescribe off label, and newer therapies.

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bonbimi
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bxrmom profile image
bxrmom

bonbimi Good luck on your move and your search for a new neuro!! I'm not in the area but I'm going to be on the hunt for a new Neuro here as well this year!! Please keep us updated.

Jessie

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Jesmcd2CommunityAmbassador

Hi bonbimi where in ny? Did you know it's freezing right now!πŸ˜„ ugh!😳

As far as Neuro's go, try calling MSAA, I'm sure they can help you!

(800) 532-7667, extension 154. Helpline hours are Monday through Friday, 8:30 am to 5:00 pm, EST; with extended Wednesday hours until 8 pm EST.😊

I'm sure Florida can't come soon enough right about now!πŸ˜„

Jes 🌠

I'm from Atlanta but in recent years moved to the northwest and my MS doc is in Seattle. When I was still in Atlanta I had been going to a neurologist at Emory University that I liked very much, but I asked him to prescribe LDN and he wouldn't. I went to an MS support group meeting where a doctor from the MS Center of Atlanta was speaking, and after his talk I asked him if anyone in his group prescribed LDN. He told me he had a few patients on it, so I left Emory and started seeing him instead. I still get my prescription from a compounding pharmacy in Deerfield Beach, Florida (Skip's). They mix it to Dr. Bihari's specifications. It's been important to me to have a doctor who will give me their best expert advice, but is willing to think outside the box and support my decisions. I appreciate my doctor's education, training and experience, but still - it's all theory until you're living with it. I think there are a few folks on here from Florida. You might also ask the pharmacy in Deerfield Beach. I'm not sure if you have a particular off label prescription in mind, but if a doctor is willing to prescribe LDN for their patient to try, they may be open to prescribing others. Good luck with your search.

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