New Here ๐Ÿ˜Š Ocrevus ?โ€™s: Hi everyone, Iโ€™m... - My MSAA Community

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New Here ๐Ÿ˜Š Ocrevus ?โ€™s

Boxxermomm214 profile image
โ€ข6 Replies

Hi everyone,

Iโ€™m 43 y/o female with RRMS. Currently on Tysabri- will wean off that, then nothing for few months then Ocrevus. JC + , already been on Tysabri 2 years before, Also Rituxan for 2 + years, & many others. What are the Cancer Risks w/ Ocrevus?

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Boxxermomm214
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dianekjs profile image
dianekjs

Hi Boxxermomm214 , the cancer risks with Ocrevus are thought to be comparable to that in the general population once all of the data was analyzed. There was some initial concern about a possible slightly increased risk of breast cancer, but after further analysis most of the involved experts concluded it was insignificant. If you haven't listened to it yet, I would strongly recommend that you take the time to watch the YouTube video on Ocrevus by Timothy Vollmer, M.D., it's really excellent. Dr. Vollmer is a respected MS specialist who has been involved in Ocrevus throughout the trials and is considered one of the foremost experts in the drug. The question and answer session towards the end is very helpful.

youtube.com/watch?v=J4prsO-...

You can also access many posts about Ocrevus in this community by doing a search for it in the upper right-hand corner. I started my infusions in June and have started to see some positive results, but it's still early to evaluate effect. Best of luck to you, I hope the transition goes smoothly for you and that you have a great response to Ocrevus. Keep us posted!

Kenu profile image
Kenu

Welcome, sorry for the reason to be here. Iโ€™m sorry ๐Ÿ˜ i donโ€™t know about the cancer risks? Have you researched there sit? Youre doctor ๐Ÿ‘จ๐Ÿผโ€โš•๏ธ should be aware of this. Prayer ๐Ÿ™ are with you๐Ÿคž Have you tried ma awareness ๐Ÿคท๐Ÿผโ€โ™‚๏ธ Good luck and let us know ๐Ÿ˜Š

Dpjinx profile image
Dpjinx

Hi. Nice to meet you. How did you do on Rituxan? My doctor wants me to consider. I react to so many Meds Good luck on Ocrevus. God bless ๐Ÿ™

Ms-Indestructible profile image
Ms-Indestructible in reply to Dpjinx

I've been on rituxan for almost two years now [once every six months] I have taken all other dmt's all with side affects with no help. Once I started with rituxan, I started to see some improvement after the second visit. My neuro said it would take a year before I should notice changes. I have no side affects and only go in for about 5 hours a time. I would recommend it highly especially if your dr recommends it.

Dpjinx profile image
Dpjinx

Itโ€™s my rheumatologist that has suggested it. She has checked with my neurologist to see if he has any objections. He said it could help me with my MS. I have RA also. I thank you for your reply. I am considering it but still am nervous. Dpjinx

Ms-Indestructible profile image
Ms-Indestructible in reply to Dpjinx

Rituxans' labeled use is for RA, but an off label use for MS. Most uses are for SPMS where there has not been any known treatment [until recently]. They monitor you very well so if you have any troubles they can stop the treatment. I really would not be too concerned. You can talk to rheumatologist about your concerns [since that dr probably understands Rituxan better]. At the time of your infusion you can also talk to the RN on duty about your concerns and they will help you with it. Your first visit should be a half dose followed by a full dose two weeks later. You are very closely monitored especially during the first dose. If I were you, say your prayers, trust, and go for it.

Also do a google search on Rituxan therapy, there is a lot of information out there.

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