So I had my appointment with the MS specialist today, and it went well. Still don't have a diagnosis, she is scheduling EEG and lumbar puncture. Said a I have abnormal about spots on my brain and that it could be any number of diseases. But it was a good experience. Just wait now for testing
Feeling better
Hi kvw_zkw glad your appt went well! Although I really hope this isn't what you have. I do understand the feeling of wanting answers.😊
When are they going to do the lumbar puncture?😕
Jes 🌠
@kvw_zkw
That's progress! Glad you're feeling better about getting closer to a diagnosis. 😀
I agree. I certainly hope it's not MS. If that should be the case though, you have all of us here to help you navigate and to offer support.
Good luck 🍀 with the testing! Please update us when you can.
Lisa
And you have no idea how much your support means to me. You are all a blessing
@kvw_zkw 💕💕💕
kvw_zkw , I'm so glad you're getting closer to getting some answers. That takes a weight off somehow. Let us know how you're doing and about your tests.
Tomorrow blood work, waiting for schedule of EEG and lumbar puncture
Thank you for the update. As to the lumbar puncture, I had one about 20 years ago and had the headache afterward, so I dreaded my most recent one. The doctor who performed this one wasn't much for bedside manner, but his technique was wonderful, and I had NO headache afterward! I pray you have a good experience with the testing process and that you get clear results. No MS would be a great answer!
Thank you
A spinal tap will help in finding if it is MS also MRI on brain and spine if you have a spinal tap do not bend down just lay down for about three days if you don't you will have a headache the size of your house.
Good luck
The waiting is hard. The unknown even worse. Praying it isn't MS, but hoping you get an answer soon. Let us know. 💕
Well it's something you don't want but you need to know what it is. I had to take two MRI's the doctor and I were standing in front of the light stand and was looking at the X-ray and he was telling me what all the white marks were then he said that I had MS
I started to slip down I started to pass out. Then he caught me and helped me to a chair and had someone got me a glass of water. Then ask me if I was with anyone I said no I was by myself. He then then set up an appointment for a spinal tap and told me I need to have someone with me for that.
But once I got to the car I'm really not sure how I got there Once I got to the car I called my husband and told him I had MS I lost it I started crying and I also at that time I knew not to much about MS.
I will never forget that moment.
Quite an introduction to MS, ssdw1958 . I'm sorry. 🙁 But I don't understand why you need a spinal tap now. It sounds like you've been diagnosed based on your MRI.
No, they say they are not conclusive enough.
I don't Need a spinal tap I was saying that from the blog I was answering I had a spinal tap to diagnose me.
Sorry about that! My brain can't keep up with what my eyes read and then what few marbles I have left get all jumbled. 😳
That's OK I had to reread it to make sure what I wanted it to say don't worry about it it was it loops that's a technique to LOL
Kvw_Zoe. Good luck on your spinal tap. I had no trouble with mine but I was already in the hospital and had a really good Dr doing the procedure. Praying you finally get some answers but that it's not ms.
And yes God is good all the times. Blessings to you.
Donnie
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