the MS movers: have MS for 25 yrs have... - My MSAA Community

My MSAA Community

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the MS movers

JAY-JAY-JAY profile image
6 Replies

have MS for 25 yrs have seen and been through a lot.

have tons of answers

just try me and you'll see

BE WELL

JAY-JAY-JAY

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JAY-JAY-JAY profile image
JAY-JAY-JAY
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6 Replies
Fancy1959 profile image
Fancy1959

Jay-Jay-Jay, it's Fancy1959 and I would like to officially welcome you to our family. I too have been MS for quite a long time. I've had it for about 20 years or so. I am glad you have joined our chat room in that you can share your knowledge with the room in general. As always there is much we can learn from one another. Remember to give us your birthday so we can enroll you in the birthday Club. It's a small club that I started so that we can as a chat room send you birthday wishes on your special day like any family would do. Until we speak again please take care and remember together we are stronger!

WAshingtongirl profile image
WAshingtongirl

Welcome, JAY-JAY-JAY ! 💕

Morllyn profile image
Morllyn

Welcome JAY-JAY-JAY !

greaterexp profile image
greaterexp

JAY-JAY-JAY , I'm sorry you're dealing with MS, but glad you're here. Having learned so much over the years, you'll be a wonderful resource.

Karen-x profile image
Karen-x

Welcome!! I am sure we will benefit from all your experience!

agapepilgrim profile image
agapepilgrim

JAY-JAY-JAY welcome! Got lots of questions! Was finally dx on 6/16, but told I've had for 53 years since temp blindness at 17. Severe pain, imbalance falling down stairs tearing tendons, spasticity, emotional roller coaster, brain fog, etc dx as fibromyalgia, COPD, bi-polar, anxiety, delayed sleep disorder, etc etc. NOW that it's MS, my family treats me different. My husband gets more frustrated with me and my only child,43 ur old daughter was my best friend. They get angry at me. HOW do you handle close family members not willing to understand the symptoms of MS lesions in the brain???? Their anger destroys me. #2- How do you deal with #10 back spasms pain when the neurologist says find a way to cope and gives you nothing stronger than hydrocone 5 mg 3x a day and it's like taking aspirin??? #3 how do you deal with emotional roller coaster rides, anger from nowhere (and never cussed in my life til now) and uncontrolled crying at slightest provocation, and again neurologist says learn to cope, but husband is disgusted with me??

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