Holidays

[Midgey_Midge06]

How are people coping with the holidays?

I have read a few posts where people have to leave parties early, etc.

i have to go to a church party tomorrow night and i am sooooo dreading it. ....

[johnMSAA Partner]

Here's a good recent post on our MS Conversations blog, Midgey_Midge06 - from one of oru guest bloggers who has MS as well, Lauren Kovacs. Might give you some good pointers when visiting fam and friends during the holidays!

blog.mymsaa.org/the-ponds-o...

- John, MSAA

[Midgey_Midge06 in reply to johnMSAA]

Thank you!!

[jimeka]

Of all places you should feel secure is a church party. If they don't understand they need to question their teaching. Try it, if it doesn't work out, don't worry, at least you gave it a shot. Remember, getting stressed before hand will cause fatigue. Let us know how it goes, will be praying for you, blessings Jimeka

[Midgey_Midge06]

jimeka thank u for the reminder. I usually do get myself all wound up beforehand.

The person i worry about pushing me too hard is my fiance. He says he understands but he just cant seem to grasp how exhausted i get

[Hidden]

Just leave when you get tired. For many of my first years of MS, I would just slip away sometimes saying goodbye sometimes not. I would call and say thank you to the host the next day. In those day I didn't really want everyone to know. Anyway, my excuses for leaving would be vague and varied...I know you will hate to go. Enjoy every moment you are there at the party, don't see the regrets.

An aside about vacations: We used to go with friends for summer trips which began at rugged outdoors areas out of the country and then proceeded to USA areas on the beach and then ocean front housing and now handicapped motel rooms on the boardwalk but my family/friends have adjusted with me every time, yours will, too. Half full/half empty-remember my perspective is from a 67 yrs old with MS for over 40 yrs. They told me back then that I would only last 20 yrs, they knew so little about MS-not like today where they are learning so much.

[Midgey_Midge06 in reply to Hidden]

That is very good advice. Thank you 😊

[CalfeeChick CommunityAmbassador in reply to Hidden]

Hi, she's learning from a true MS Warrior! There is so much to learn. Lynn

#Calfeechick

[Sukie427]

We were going to have a party but I am just too tired. Nobody cared, and if they did, they have been immediately disinvited to the one I will have when I feel like having it. In other words, do what you can, don't push it, and put yourself first this one time

[Midgey_Midge06]

I am at the party now. My man said we wud stay a half hour but we have been here 2 hours. I am exhausted. But i found a little friend that is 6 years old named Bella. She is adorable and i am glad i met her

[jimeka in reply to Midgey_Midge06]

How did the party go? Did you manage to enjoy yourself? God sends us angels in all shapes and sizes. Enjoy Christmas but pace yourself, blessings Jimeka

[Midgey_Midge06 in reply to jimeka]

After a few hours i started to get very tired so we left. My fiance was good about keeping an eye on me. He knew once i reached my limit. And today i got to sleep in which was a bonus 😊

[Good_enough]

It seems as though I always get soo emotional during the holidays that it takes a tole on my mental brain. The expectations overwhelm my practical state of being. I think to myself " live in the present state, just be". We survive with our disability , we should respect it, and f*ck it... It's authentic. That's a good thing