How to manage these conversations?

I adore this forum. I look forward to reading all the messages with my morning coffee ☕️

And then with my mid morning snack, my lunch, my afternoon tea, my supper, my bedtime nightcap...

My point is, I do not want to miss a thing with my new found friends but I should be doing other things and I am going to have to put myself on a forum diet. (No, not because I'm gaining weight 😉)

Any suggestions from perhaps the more tech savvy among us on how to best do this?


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16 Replies

  • Me, too, Erash. The dusting and scrubbing is calling. I'd much rather visit with everyone though. 💕

  • Life is too too short to be dusting and vacuuming, no one else will do it, the dust will still be there tomorrow. Enjoy yourselves, visit the forum! 🙋 🌈

  • I agree w Jimeka, visit with us. If you must dust do it when we are sleeping. I have come to rely on you guys. I used to post some things on Facebook but realized no one understands. This place is the best!!!

  • We have to take a break and sit often. This forum is a good way to articulate thoughts and use your brain . It can be a little obsessive though. That's where practicing self discipline comes in

  • I like to check in to see how everyone is doing, I know I have been helped on bad days, so if I can give something back

  • I believe Good_Enough and Jimeka and everyone else who posted the dust can wait! You never know when someone might need your laugh, joke, or support. Don't deny yourself a chance to make a difference. Especially erash and everyone else who has so much to give! MSFighter

  • I know I am totally addicted to the forum, all the good advice, jokes and just healthy conversations with people who "get it" ! Thank you all for making me smile each day. Kelly xx

  • I know what you mean, Erash. I'm a member of a few relevant forums on here so usually do a once a day check in to catch up. It takes a little time but then I 'm not able to keep up the frantically packed physical schedule I used to anyway, so is a nice 'sitty downy' activity for me. I think for a lot of users, these types of forums are invaluable, especially if their activities are limited or they are uncomfortable socialising in other ways ( Sweating, stuttering, odd movement and being generally vague are my personal social demons ! ). The best thing in forums such as these is the understanding and non judgemental acceptance - something we often don't find in the 'outside' world amongst non affected people. Since we often experience similar symptoms, we can reassure, empathise, support and share coping strategies. Then there is the dark humour ... : ))

    So by all means ration yourself if you are neglecting essential tasks ( not sure I'm classing daily dusting as essential ! ) but do not feel guilty for visiting - we have a rough enough time and often a lack of support in our lives, we need to make time for our needs too. x

  • angelite your words are so very true. Thank you for that perspective. Believe me, dusting, no matter how much it might be needed, is never something I feel guilty NOT doing! 😊

  • erash Yesterday I was going to post about this very same thing, but you beat me to it. My topic was going to start with 'I HAVE A REAL PROBLEM WITH THIS GROUP ' then I was going to say that the problem is I couldn't find a nicer group of people to chat with. You guys posts interesting topics and share stories of yourself, you offer advice and make people laugh. I was going to say you also make it hard to get things accomplished but erash spoke these words. I have mentioned in other posts that I'm newly diagnosed and I don't believe my condition is as progressed as some of yours, but I find you all very accepting no matter where you are in the stage of this disease. You do bring a smile to my face and my heart when I I come on here, so thanks. Judi

  • Judi4 very true! This is A very special group. I have joined and unjointed several other groups. Some were pretty easy to ignore. But I don't want to miss a thing here! That's the problem...😊

  • erash l hate to say it, but it sounds like l dont get on enough? I get on here 1st thing in the morning for awhile, answer my messages and posts and feeds :) Then l dont get on for rest of the day. I think it's because, once lm here l will spend hrs :D What to do.....

  • Jesmcd2 well when you are on, you are very productive. I feel like we are always talking and loved it! 👍

  • My dear, you have given me a lot of support already and I can't thank you enough! Let's giggle more!!!

  • I love ❤️ this group too. All of you are accepting, honest, share your experiences and expertise, and the laughter...I truly treasure the laughter, especially on those less-than-uplifting days.

    I know if I have a question about any drug or symptom, you all will have the answers. And if I need to unload or cry, you will listen and understand. Thank you.

    Yes, the dusting is long overdue. I can take my finger and write 'MS' on the bookshelf and it would be easier to read than the book titles. 😉 I just need to find better balance. Mental stuff (even reading and replying here) drains me, and leaves no energy for anything else. Maybe I ought to go back on the Ritalin... But I will figure it out.

    Fortunately, I have no children at home anymore and I'm no longer employed. At least I'm not neglecting them. As for my husband, he thinks you all and this forum are GREAT!

    Thankful for all of you!💕

  • It's not dust; it's patina.

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