I was diagnosed with fibromyalgia almost 3 years ago however recently I have developed more symptoms which my GP has now suggested referral to neurologist to test for MS. Has anybody else had fibro which then developed into MS?
I'm a bit scared at the moment and very confused 😔
With have a Fibomyalgia dx and am now going to be tested for MS, so can't help, but you're not on your own. I'd be interested to follow this thread though on my own behalf, as I haven't a clue what's next.
My mom was diagnosed with fibromyalgia many years ago (15-20). When my symptoms began (fall, 2012) - the doctors assumed I had fibromyalgia also. I didn't . Then my symptoms were labeled small fiber neuropathy - then ideological neuropathy. I was told MS has "fibromyalgia-like components". I was diagnosed with PPMS 2 years ago BUT now understand my mom's symptoms.
Oh my dear, I totally understand you. I was diagnosed with fibro in my early 30's (I'm 62) and with MS at 54. Often words just don't come, struggling to carry on a conversation is constant. Is it fibro or MS? I still don't know which monster is stealing my brain!
At the age of 50 I filed for disability partly because I felt so ridiculous at work when I would try to put my thoughts into words. The long pauses while I frantically tried to find the right word in my attempt to sound somewhat intelligent were energy sucking. I would go to my car at lunch and set a timer while I napped, just so I could get through the afternoon.
Sorry for babbling on, but the struggle is real. My heart goes out to you for what you're faced with. Prayer and sense of humor are my go-to's when I feel overwhelmed.
I am very interested in following you. Unfortunately, we belong to the same club . . . the one no one chooses to become members.
God Bless!
Thank you. At the end of the day I guess it doesn't matter which symptoms are what. I listed them and showed the neurologist and so sadly said there is no way for us to know. At least honest! The MRI dies show brain and cèrvical lesions so I know I have MS. My blood work always shows serious inflammation and actual trigger points pot up like almonds in back legs and this year my arm. Rheumatology says that MS doesn't do that. So I continue with the muscle relaxers and Topamax for the migraines and Celexa for my spiraling emotions thyroxine for the hypothyroidism Prilosec for the acid reflux and every supplement that might help! Now Aubabagio! Today I am not laughing
Hi I don't know much about fibromyalger but been Diagnosed with MS for nearly 30 years and it sound like brain fog to me hopefully you get an answer soon thinking of you mags 52
Be thankful you have a great doctor!!! I was diagnosed 20 yrs ago with fibromyalgia. My symptoms progressively worsened. The "fibro fog" was causing serious problems. Afraid to drive My doctor kept saying it's the BEast fibromyalgia and trying different meds. Then he sent me for MRI for another medical problem Burning Tomgue Syndome.. Yep, brain lesions and 2 in the neck. The neurologist said by my symptoms it was MS all along for 20 yrs and not fibro. Maybe I will finally get better on MS med Aubagio. I still have same symptoms no matter what the "geniuses" say!! 10th day on Aubagio - no affects, no changes. Just teportimg
You have every right to be scared as you sit in limbo waiting for a true dx. You are not alone; I think that all of us have been there one time or another. Just try to stay positive that whatever it turns out to be, you can deal with it. Good luck!
Thank everyone for your comments. My GP has pushed for the urgent referral which is on Monday so hopefully I will have a bit of clarity soon.
It's crazy though how similar the symptoms are. It would just be lovely to have just one day without pain.
I've seen a psychic today who has said between now and August next year I will be undergoing a lot of treatments possibly down in London (I'm from south Manchester) and that I will have a procedure carried out on my spine. Unfortunately she did see a wheelchair though that wasn't immediate. I didn't mention anything to her about my health she just picked up on really relevant points.
Anyway sorry to waffle on.
Much love to you all xx
I know how you feel hopefully all will be cleared up soon best wishes mags 52
The Impact of Generics on MS Treatment
MS and Sjogren's Syndrome
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