MS and facial spasms: I was recently... - My MSAA Community

My MSAA Community

9,405 members21,193 posts

MS and facial spasms

Katyw46 profile image
4 Replies

I was recently diagnosed with MS and I currently have Hemifacial twitching. I just started my medication. I have relapsing remitting. It's getting pretty intense. I hadn't seen my husband for a week and when I came home he asked what happened to my face. It looks like the right side of my mouth is being pulled up and over and my eye is always squinted. What can I do? Is there a way to make it better or do I just wait it out?

Written by
Katyw46 profile image
Katyw46
To view profiles and participate in discussions please or .
4 Replies

I would talk to your neurologist. There may be some physical therapy, or treatment that may be able to help. It could also be something besides MS causing it. I think it is always good to follow up with your provider, if you are confident with their medical knowledge and experience. Best wishes!

Royjr profile image
Royjr

I think I read somewhere that Botox injections will help this condition. I know the FDA has approved Botox for treatment in ME related issues but check with your neurologist. Good luck

Katyw46 profile image
Katyw46

To anyone that's had these same issues I saw my neurologist today and she has had me stop the tecfidera I started and I am getting another MRI to check for another possible flair. She said due to the high amount of steroids she had me take IV for 5 days it may have compromised my immune system and caused another minor flair. Will let you know what she says. And she did mention botox as an option if it's not a flair. Thank you guys for responding!

Judi4 profile image
Judi4

I just noticed your post. I have the same thing with the left side of my face. I am going for the official diagnosis of ms at the end of the month. My sister was diagnosed back in October of 2015. I asked her if this was a symptom of ms and she said she hadn't experienced anything like this. I thought I was having a stroke, I also have slurred speech.

Not what you're looking for?

You may also like...

MS and Reclast?

Hi. My name is Kym. I've had MS for 32 years, and I have really bad osteoporosis. My bone Dr. wants...
kymrob91457 profile image

Hearing and MS?

Is there any coalition between the 2 do you think? I went for my hearing test yesterday and they...
Jesmcd2 profile image
CommunityAmbassador

Spasms

My right leg and arm at night lately have been spasming and jerking so bad! So bad that it's like I...
MSSurvivor profile image

Muscle spasms and walking

Is any one of you helped with walking by decreasing your muscle spasms with muscle relaxers? Muscle...
greaterexp profile image

Spasms

Just wanted to pass on this news...my husband was getting severe spasms all night long in his legs....
mcheri profile image

Moderation team

See all
johnMSAA profile image
johnMSAAPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.