Just diagnosed

[Lucille3]

Hi my name is Colleen and I was just diagnosed with ms on May 2, 2016. I just signed up to msaa yesterday. I hope I can learn from all the post and also contribute experiences I have been going through. Have a wonderful day

[kjc1951]

Colleen, welcome to the club. Not one you necessarily wanted to be a member of, but since you are, make the most of it. Educate yourself with all the information you can find then remember each MS person is totally unique as to the way they respond to the disease. Montel has painful chest hugs, Sally has terrible leg spasms, and my husband Joe likes to be warm rather than cool and reacts to the heat as most MS patients do to the cold. We have moved to Florida from Northern Wisconsin so he could be warm rather than cold, not to mention motorized wheelchairs do not run well in snow. Joe was diagnosed in 1977. There were definitely remission periods over the years, but since 1993 he has used some sort of motorized device for mobility. He is now considered a quadriplegic and is in a motorized chair. He taught school until 2000 and has written a book on the history of the civil war. We have ups and downs but each day is fun. That's the way we roll. We don't dwell on the what could have been and do what we want most days just a bit different than most people would do it. Joe did a video in 2010 for the National MS society. You can find it by googling We Keep Moving and looking for the Winter Garden Florida piece. We have had a great life and Joe still works two days a week. We feel lucky we have had these years to adapt and move into all of the necessary changes to keep moving. People in an accident come home being quads, we were allowed to grow into this living our life "normally". Anything is possible if you Keep Moving!!! Stay positive and keep a good attitude.

[KKlynch5096 in reply to kjc1951]

Happy for you. My husband after 34 years divorce me. I just got the divorce decree last week. He was abusive to me. Yes, made an appointment with a pychologist. I need to talk with a professional. No family support at all. Meaning parents, sister and brother. I am a RN always taking care of everone. Thank God for my friends.

[Lucille3 in reply to KKlynch5096]

Thank goodness for friend and family for me. Day by day and right I do second by second

[Astrea in reply to KKlynch5096]

Sorry that your husband divorced you after so long. That is definitely hard. I have been married for only 12 years and there are days since my diagnosis where my husband says that he is done because he can't handle things now. I fear the day that he actually leaves because of not being able to deal.

[KKlynch5096 in reply to kjc1951]

I like the sun more than the cold weather.

[Fancy1959]

I don't wish to welcome into the MS Club because as we all know it's not a club most of us would like to be part of. What I would like to do is welcome you to the support and to the sharing of problems issues and strengths in this community that this site will offer you. never give in never give up to Ms. Use physical therapy as much as possible. And call for support and positive reinforcement every time you need it. Hopefully we will be here and someone will hear you.

[Cocoasmom]

Me too on May 20 2016....:/

[Lucille3 in reply to Cocoasmom]

It's been very hard to have my life change over night really. I pray for strength to get though all this change

[Cocoasmom in reply to Lucille3]

Yes praying for the grace to deal with this new lifestyle. After a week in the hospital and a month in bed after that I returned to work but I have little energy for much else. The summer has been brutal with the heat. Hoping for more energy in the fall.

[KKlynch5096]

I pray you are on Copaxoxe.

[Lucille3 in reply to KKlynch5096]

Just started tecfidera

[KKlynch5096 in reply to Lucille3]

Is that by mouth MS medication? I do know that Copaxone is the best MS treatment. When I was DX over 15 years it was a sq injection everyday. But, now it is double the dosage 3 times a week. I know many people have needle phobia.it shows 75 percent reduction in relapses. It has been a God send to me. The size of the needle Is so much better than IM injections. Hope you understand what I am saying. I am a RN. Good luck. When I was first diagnosed I had 19lesions in my brain and spinal cord. Which is why everyone thought I had it 10 years prior.I am still walking without any aids.

[KKlynch5096]

I wished they would have had something like this 16 years ago. I remember thinking I just wanted to talk with anyone who had MS.

[Momjules]

Hi I had a massive heart attack in August of 2007 then two years later diabetes snuck in Then March of 2013 ms came along. I'm tired and have side pain that goes away

I'm broken and depressed

This all started at 45 years old

I take my ms cops one and a insulin shot plus twelve pills a day

Don't forget the heart failure. I could never hold a eight hour a day job. Depression and anxiety are also present

What a crummy life

[Royjr in reply to Momjules]

Hi, talking to your fellow MS brothers and sisters will help your depression a great deal. Don't hesitate to voice your sadness or share your feelings to us. We listen and have your back. Don't feel alone because you're not. Stay strong my friend and laugh. I laugh at this disease every chance I can.

[Kymmie_67]

Hello and welcome!