Pins and needles and other neurological symptoms .. what was your first symptoms

[diww1]

I am waiting to see a neurologist

Started with pins and needles in hands and face then feet .. stayed for 2 weeks in hands then came and went and now constant .. as well as pins and needles . Prickles all over on and off and electric like shocks

I have spondylosis in neck

[Hidden]

Hello there

Sorry to hear of your symptoms. I hope your neurologist will send you for an MRI scan of your head & neck as spondylotic changes in the neck are capable of causing spinal cord compression which in turn can cause myelopathy if left untreated.

I started similarly with itching, burning & tingling in my left hand & arm, which my GP initially thought was carpal tunnel syndrome (SPOILER ALERT _ IT WASN'T) - my MRI revealed a massive disc herniation almost cutting my spinal cord in two. Within 5 months I went from arm symptoms to full blown myelopathy when I had difficulty walking & climbing stairs & recurrent falls.

I had spinal decompression surgery which help prevent further deterioration in symptoms 7 years ago now, but still have problems, But I don't regret having surgery for one minute - I would have been in a much worse situation had I not.

Good luck & keep us posted how you get on.

Best Wishes

[diww1 in reply to Hidden]

Thanks for your reply

I am sure they will do an MRI

I wish they'd done it as the same time as a head one I had 2 weeks ago

But my symptoms weren't as bad then

I am glad surgery helped you

. Sadly I can't ever have surgery that's the worry

I am not operable no matter what the reason

The symptoms are awful aren't they

[Hidden in reply to diww1]

I'm surprised that they didn't do a head & neck one tbh. I read through your other post on another page - I'm sorry to hear you have got so many medical issues - it makes things really difficult.

The one thing I did want to ask is do you a haematologist looking after you - as if that is your concern with needing an op there are things they can put in place to help control clotting & prevent bleeding.

Also with modern neurosurgical techniques, there are possible alternatives such as endoscopic discectomy should it come to it - but you would need someone suitably qualified.

As for neuropathic pain - the anticonvulsants or antidepressants meds have a role to play here - if they are suitable for you.

Best wishes

[diww1 in reply to Hidden]

Hi

Yes my hematologist is looking after me .. I had 4 small bowel poylps.removed and came off warfarin and bridges on clexane and I wasn't even anticoagulated and I lost 4 1/2 pints of blood

I've had it's in my leg lungs and.brain and three rectal hemorrhages

I was rushed in with gallbladder issues 6 weeks ago after these

Pins and needles started

They said I had to have my gallbladder out and they then looked at my medical history No way would they remove it they said

Because I have so many illnesses and I clot and bleed

They wouldn't even biopsy my list meanapause large ovarian cyst I have at the moment I can't even have key hole

My blood clotting diaorder is so complicated and I clot and bleed even with small polyp removal while I was awake by colonoscopy

I have hiatus hernia multiple prolapses bone on bone knees

48-96 hit flushes with full body sweats a day +post meanapause)

I am double the weight I should be and asthmatic

I've had pnemonia twice in the last year

I.am not operable they will.manage me and I will likely die of this 😥

There's many drugs I can't take too it's scary because I can't have treatment

[Hidden in reply to diww1]

Wow that's a hell of a lot to go through. I can see the dilemma.

I don't know what to say apart from I hope they find some solutions that are safe for you.

Hugs x

[diww1 in reply to Hidden]

Thanks so much for your kindness x