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Welcome to my life...... HS... I hate it!!!! :)

I contracted HS when I was 18. (32 years ago - Yeah! I'm old). I was told straight off from a works nurse that it was only dirty people who get puss lumps under their arms. I had a massive lump under my right armpit. Because of this, I kept it and didn't consult my GP. However, it quickly spread to the groins and my other armpit. I have also had it behind my ears. Many years down the line and many different treaments later, I have had incision and skin grafting and all sorts of other cut and pack operations. Currently I am still seeing a fantastic surgeon and a team of dermatologists. Still ain't going away. In fact, because I cannot take time off work, yes I still work full time in a very demanding job, the condition is getting worse. The financial aspect is making it difficult to have time to go into hospital for operations and then recovery. I spent many years on benefits through operations and cannot go through that again. I am in pain 24/7 and have a few down days but I wish to say that, although I have a most severe case of HS, I have many days where I am thankfull for the help and support of my medical professionals including my two GPs. I wish to know if there are any local support groups in the Glasgow and west of Scotland area. Anyone update me????? Thank you!! :)

5 Replies

Hi Bio-thingey, sorry to hear you've been having such a rough time. Maybe 'Spot' on this site can offer you some advice on support groups.

I know there's a British Association for HS based in Chatham, Kent (you probably already know this). I suppose you could try emailing them to see if they know of any groups in your area.


I wish there was some more info I could give you.

Take Care, Shell.


Thanks Shell, I appreciate it. I'll go digging. :)


I am not local to you but I empathise with wat you are going thru. My first attack was when I was

17 and I was told I had scabies!! - i also felt very bad, very dirty. It's a bad condition but did you know it is genetic and appears once the body is thru puberty?? - Spot


Thanks Spot...I have been asked if anyone in my family has it suggesting it may be genetic. In my case it is not..unless someone ain't telling the truth. LOl. Also I reckon I am well beyond puberty and it's getting worse not better. Wish it was as you suggest but it ain't. I have the worst form of this ailment that most of my health support have ever seen. I am expected to go into hospital again soon for some major cut and reconstruction. I was just looking to see if there was any local support that maybe holds a group meeting for a bit of support. I am finding this is getting increasingly harder to cope with as it gets worse. Thanks anyway...If you do hear of anything, drop me a line. Good luck to you too. :)


Hi!. Im not sure if anyone still uses this site but I too suffer HS. I was diagnosed 5 years ago and have since suffered greatly. at first it was random flares but for past 6 weeks I have not had a break at all. Its constant this time and they are always infected. i feel so ill and tired and i wish someone would come up with a decent treatment for us.


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