maisie

[weemaisie]

hi there, I’ve been diagnosed with MSAC in January, but have had symptoms for about 2 years now and would be good to chat to the members here.

[Whitefeather1]

Good morning, welcome to the group but sorry you have to find yourself here ! You'll find a wealth of information within this group , no question asked is too small.

Caroline

[Paul_and_Sue_Wood]

Hi,

Welcome to our group with many members and carers who are on there MSA journey as you are.

You will find everyones journey varies in types of symptoms and timescales.

First port of call would be the MSA Trust web site as they have a wealth of information and help.

Any questions ask away. Feel like a rant... Shout out.

We are all here to help each other.

Paul and Sue

[weemaisie in reply to Paul_and_Sue_Wood]

Hi Paul and Sue,

I joined the Trust and we have a video link for a group meeting on the 10th of October, so will be good to speak to the group, I also had conversations with the MSA nurse Katie

[esj20]

Hi there

Sorry that you’ve found your way here but glad you have found this site. I also see you’ve made contact with Katie, she’s brilliant and has made my journey easier.

Wishing you well

Alec

[weemaisie in reply to esj20]

Thanks Alec, yes Katie is great, helped get my BP meds increased as I had ended up in hospital with blackouts, home now still dizzy and mobility poor, think it’s time for a wheelchair