RevReturns: Long story long made short... - Multiple System A...

Multiple System Atrophy Trust

1,640 members1,295 posts

RevReturns

ReverendBadger profile image
19 Replies

Long story long made short. Rapid deterioration and then 17 days in hospice then discharged to nursing home where

I remain now and wheelchair bound.

Written by
ReverendBadger profile image
ReverendBadger
To view profiles and participate in discussions please or .
19 Replies
Monkeyfeet1 profile image
Monkeyfeet1

welcome back, Ken. I hope you’re comfortable xXx

ReverendBadger profile image
ReverendBadger in reply to Monkeyfeet1

Acceptably so,how are you ?

Monkeyfeet1 profile image
Monkeyfeet1 in reply to ReverendBadger

Okay thanks xxx

esj20 profile image
esj20

very sorry to hear this.

Bloody MSA!

ReverendBadger profile image
ReverendBadger in reply to esj20

On the + no more putting up with the wife’s cooking !

esj20 profile image
esj20 in reply to ReverendBadger

😀

Ruffner profile image
Ruffner

I've been wondering about you - miss your entertaining and insightful posts. I'm so sorry that you are going through this and hope that you are being well cared for.

ReverendBadger profile image
ReverendBadger in reply to Ruffner

I have been here 4 months and still learning the ropes . The staff here are very nice for example after a recent Catheter change I haq 5 women checking the state of my foreskin. You couldn’t ask for more really , and only 1’545 a week

Yanno profile image
Yanno

Hello Ken, lovely to hear from you again. Great to hear you’re still seeing the positive side of life. Best wishes to Anne.

Take care, Ian

ReverendBadger profile image
ReverendBadger in reply to Yanno

Thanks Ian. We will be at Tewkesbury.

thedjsupreme profile image
thedjsupreme

Sorry to hear this.

Paul_and_Sue_Wood profile image
Paul_and_Sue_Wood

Rev

Good to see you back and in a safe place.

Peace be with you.

Paul and Sue

ReverendBadger profile image
ReverendBadger in reply to Paul_and_Sue_Wood

Peace good peas not.

GreenJo profile image
GreenJo

So sorry to hear this - hope you've stabilised a bit for now

ReverendBadger profile image
ReverendBadger in reply to GreenJo

Not really, tremour muscle weakness swallowing fatigue all worse.PEG soon.

GreenJo profile image
GreenJo in reply to ReverendBadger

Yes hellish disease. TC not so good either. Deteriorated a lot over Christmas - now on hyoscine driver and reduced feed and fluid. He's not in pain - small mercies

Derkie54 profile image
Derkie54

Welcome back, wondered where you had gone.

Could you get CHC funding to help with your care home fees ?

ReverendBadger profile image
ReverendBadger in reply to Derkie54

Yes chc awarded

thedjsupreme profile image
thedjsupreme

So sorry to hear this. Hope they keep you comfortable

You may also like...

just need to talk to others with this condition

tips or advice on how others deal with this . How long they have had it and how the symptoms have...

electric wheelchairs

we are about to embark on an electric wheelchair. My question is, have any of you /partners had use...

My heart is aching...

married for 31 years and now I am alone. I am thankful that he was at home and my son & I could be...

Finally got our diagnosis

more I read into it, the more I just knew. Now for the long gruelling road ahead.... my Dad’s...

My dearest friend Maggie 💔 09/11/1952 - 13/01/2024

friend Maggie passed away Saturday morning after a short bout of pneumonia. She was the most...