Groundhog day part 2 (some days later) - Multiple System A...

Multiple System Atrophy Trust

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Groundhog day part 2 (some days later)

Westcott profile image
6 Replies

Well so much for getting back to you tomorrow! Horribĺe few days, have now got a mirror ìmage dressing òn the other leg. Little Barney is nothing if not thorough bless him. Ì look into his eyes and I'm lost. Just had a painting done of him as a present for my husband for our golden wedding,, hope Den likes it.

Well I've at long last got an appointment with the consultant on next Monday. First time I've seen anyone from the Elderly Persons Team since I was diagnosed 2yrs ago. Den can't come with me so one of my carers will accompany me. I was hoping to tell the Dr what I wanted him to know but with Joanne along it will be "the truth the whole truth and nothing but the truth " Den was enormously relieved when she assured him that she wouldn't "let her (jerking her thumb at me) get away with añy of her fairy stories)!! Humphh, I thought we were becoming friends! As well as being a complete nut case she is very good at her job and has already canvassed the opinion of the other çarers as to how I've changed in the last 3 mths. Ì don't ķnow why I'm so worried about it after all they can't admit me for nothing but my tummy has been bleeding quite badly foŕ the last couple of days and that's something I was hoping to keep to myself. Not strictly a lie but I doubt our priest would view it that way and with Joanne around there's no point in trying to keep it quiet ....she'll drop me right in it!! She's lovely - what d'ya think my chances are of persuading the paramedics to stop off at the pub.?? Mmm that's what i think.

Night night all, do hope you're not letting this bloody beastly bèast grind you ďown. If we stick together we can beat him çoź we have something he will never have and that's love. It may be a multi generational family or a lovable pet bùt I bet there's someone out there who ĺoves us - I know there is coz I pray to him èvery night - and after all our end is simply our beginning where we can't be hurt any more.

God bless

Sleep tight don't let the bed bugs bitexxx

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Westcott profile image
Westcott
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6 Replies
Niknak74 profile image
Niknak74

Okay, so my hearts truely melted, but you took us through some giggles even though its the hardest circumstances to live with and navigate! And you've had some injuries lately!

Said it before and I'll say it again, your a real inspiration and although I'm sure there'll be tears your end at times, you certainly deal with it all with humour which in my view is simply the best way.

Joanne sounds rather fantastic and I'm very glad she's got you banged to rights on 'the truth, the whole truth and nothing but the truth' 😉 only because she clearly has emotionally invested big style in you which is brilliant and how it should be. Best to fess up as how are they going to keep patching you up and preventing more problems, so I'm glad Joanne's got your back so to speak.

Barney and Den clearly have a wonderful mum/wife and the picture will be lovely for Den as our fur babies are very special to us and congratulations on your upcoming golden wedding anniversary!

I hope your injuries heal quickly and your comfortable enough. Your absolutely right, it's clichéd but it's true. If we have love we can beat anything, and you sound like you have that in abundance which is heart warming.

Stay smiling and sending some extra love your way xxx

I actually think your posts should be compiled into a 'diary entries' style book! I would buy it 🤗 x

Westcott profile image
Westcott in reply to

Entitled 'How to cope with MSA when theĢin's Fiñished'

😳🤣🤣

Helenhooter profile image
Helenhooter

😘😘😘XXX 🤗🤗🤗

FredaE profile image
FredaE

use the proceeds of the book to buy a pair of sheepskin boots for Barney

🐕🐕???

Westcott profile image
Westcott in reply to FredaE

What a brilliant idea!

Barney on his best behaviour!! The finished portrait I love ìt.

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