Has anyone with MSA tried a plant based diet? Did it help?

[Chicken48]

MSA Plant based diet.

[FredaE]

I am sure that there are people in he MSA community who have. I am equally sure that the proportion of people who like it is exactly the same as in the rest of the population. Rare diseases have rare causes. You are going to have to give up a lot of things because of MSA. Please don't give up anything that gives you pleasure in the hope of a miracle cure. The only miracle is how many peopple stilll manage to find things to enjoy in spite of this rotten disease. Good wishes. First the cause and then the cure - we will do it one day

[ChocolatePot]

When hubby had a lot of tummy troubles and pain, we tried every single diet going out there, incl Plant based and low fodmap ones. It made absolutely no difference to him or his pain or his mobility. Give it a go, but be careful not to loose out on some essentials minerals or vitamins. Good luck, in the end it is what you feel is right for you and what you believe in. Hubby believes in his donuts and jelly babies for the moment.

[Juliehabib]

Watch Netflix

Heal

And Amazon prime

What the health

These show how all disease starts in the gut . And diet is responsible for the disease .

Merry Christmas 🎄

[Juliehabib in reply to Juliehabib]

What the health is on Netflix

[Juliehabib]

Amazon prime watch

The gut

[Juliehabib]

Also what on Amazon prime

The gut : our second brain . Shows how PD has been healed which is similar to MSA .

Very interesting and scientific . Hope this helps abs gives you some hope to a future cure .

[Juliehabib]

Also on Amazon prime watch

Microbiota : the amazing powers of the gut

It’s suggested it’s more about microbiome changes and the lack of good bacteria that causes the gut lining to break letting bad bacteria in the blood causing disease . So suggesting to look after good bacteria probiotics and probiotics which is supported by a good healthy diet to change the microbiome back to healthy so the gut can heal and stop the Pathogens going up the Venus nerve to the brain . Really interesting and gives us all hope .

Best wishes .

[Rhyothemis]

It could be helpful if it lowers protein intake generally and specifically of certain amino acids (methionine) since that will reduce mTOR activation. There is a trial of sirolimus aka rapamycin for MSA; rapamycin acts by inhibiting mTOR. A whole foods plant based diet should do that if not supplemented with protein powders or including seitan (wheat gluten) or excessive amounts of tofu. WFPB (whole foods plant based) diet typically excludes stuff like vegan meat replacers since they are processed foods. Cronometer is an app that can help track nutrient intakes. Minimum protein requirement for people not doing weight training and in absence of other health concerns is 0.8 g per kg body weight per day; it is pretty easy to meet the minimum on WFPB. I would watch out for deficiencies/sub-optimal intakes of B vitamins (especially B12 and niacin), zinc and selenium. IMO selenium from plant sources such as brazil nuts is inferior to that from fish, same thing for omega 3 fatty acids. I would say an ideal diet would be WFPB plus bivalves like mussels - except for the microplastic contamination problem (it is too bad we have plastics in the oceans).

Here's an article on mTOR inhibition and MSA:

link.springer.com/article/1...

As far as pleasure/satisfaction from diet goes - in my experience you can find very pleasurable foods in any diet plan (I've tried a bunch). This is especially true when practicing daily intermittent fasting - not eating for 12 -16 hrs per day (I usually try for 14). Protein hunger is a thing, though, and I have had it and it is hard to deal with. Typically most of my diet is vegan but I eat few ounces of fish once or twice a week and sample the chicken I've made for other family members and drink Yakult probiotic, which is dairy based. I have not been diagnosed with MSA; my father was diagnosed with probable MSA-C and has since passed away. I have had very similar early symptoms, but it it is not supposed to be hereditary (so maybe not MSA but some kind of ataxia - but both are protein aggregation problems and both should be affected by mTOR) . Much of the symptoms seem to be under control right now. Last big flare up I had I had been taking protein powders and eating egg whites and greek yogurt in an effort to promote muscle mass gains when weight training.