Pathway

[Spanishholidays]

I,he only just found this trust and I,m not very good with the iPad so please make allowances ,I was a bit taken back by now poorly most patients were,I was under the impression the end of life was very quick,I was diagnosed in 2016 ,I've had near very little information other than no cure no treatment and every thing else must be old age so I was pleased to discover the site ,I just want information as to the path ahead of possible.

[Yanno]

Hello, and as we always say, you are very welcome albeit you will wish you weren't here. It sounds as if you don't live in the UK now....extended Spanish holiday by chance!!

Have you looked at the MSA Trust web site - they have a load of useful information and factsheets that can be looked at.

The one thing to always remember is that everyone has a slightly different journey with MSA - don't worry that everything you read will happen to you. This is the place if you have worries or just want to ask a question. There is a fantastic group of people who all have experience of MSA and are very willing to help if they can.

Take care, Ian

[Spanishholidays]

Thank you for replying,no I live here I try to go away to spain about 3/4 times a year if I can

[Tiger5]

We too have enjoyed Spanish holidays 😊Sorry you have been disappointed. I too was diagnosed not long ago, so much is still to learn about this and it is different from person to person I'm still learning to go slower.