My journey with MSA

[Neillpedro]

This is my journey. Living with the very rare MSA (Multiple System Atrophy) disease has so many challenges both personally and for those around me. Hopefully this blog will help to promote awareness of the disease in South Africa and bring some understanding and perspective to MSA. msainsouthafrica.blogspot.c...

[Marie_14]

Neill do you know there is an MSA site on HU? It is not as busy as the PSP site and you are certainly welcome here. Some people have PSP and MSA as did my husband. So welcome to you and please stick around. People on here are great and will help you through this. I would touch base with the MSA site though as there are some very nice people on there too.

Marie x

[Neillpedro in reply to Marie_14]

Thanks Marie.. I will stay here for the meantime and look at the MSA site. I was so hoping to download your App, however I see there is not one for Android only iPhone.. No matter.. HAve a good day! Hugs

[Marie_14 in reply to Neillpedro]

Neill

Cracking up! I hadn't realised you had posted to the MSA site. I am on both sites but don't seem to get MSA posts very often, so assumed you were on the PSP site! That will teach me to read where the posts come from in future?

If you haven't been in contact with the MSA Trustees you might want to contact them? They are so helpful and kind. Maybe they will learn something from your post? Something like problems with the prostate. That is the first thing I can think of with my husband. He was supposed to have a Biopsy but didn't make another appointment.

He also had waterworks problems from early on and pain in his legs! This was all before his other symptoms. He hated going to the doctor though so that was a problem. He learnt early on not to tell me anything as I would make an appointment for him!

However it wouldn't have made any difference in the end? All these neurological conditions are devastating. Fingers crossed that the research going on will help and soon.

Just reading the other posts and I didn't receive most of them! I don't understand why but HU can be a bit temperamental.

I always seem to get Ian's! Hope you and Jackie are doing well Ian.

Marie x

[Neillpedro in reply to Marie_14]

Marie.. I stared cracking up a long time ago 😉