I have ET, platelets around 800, on aspirin and am 37 with 2 young kids. Although I don't work full time I walk my dogs for around 1-1 1/2 hrs each day and do voluntary work a couple of mornings a week, plus all the domestic chores that come with a busy family. I average about 8 hrs sleep a night.
I am interested to know if the fatigue hits us all in the same way.
I would describe my fatigue as something that hits me like a wave. I can feel fine one minute and suddenly have an overwhelming feeling off tiredness. I can be driving, walking or even washing up when it happens. If I give in to it I can often feel worse and then find it hard to get off the sofa. I wouldn't say it is tiredness where I can fall asleep but more whole body exhaustion if that makes sense!
In the evening I can fall asleep from the point at which I slump on the sofa, anytime from 8pm onwards. The only way to stop this is by keeping busy but actually I really need to sit down and stop at this point in the day.
I really don't think other people quite understand how this feels! I am interested to know if others suffer in this way or is it just me?