Hi I know I have written on here before about seeing another consultant for a second opinion but I am now seriously looking into it.
I was wondering if Maz would think Prof Harrison would have any suggestions as to what I can do about the fatigue and after shower itching. My Consultant just shrugged it off and said I should see my GP as if it's not connected to MF. I am trying to keep busy and as active as possible but the fatigue overtakes it and I just curl up and sink into the sofa as if I have flu.
In 2 weeks I am visiting family I haven't seen in quite a while and I dread how I will cope for full days at a time.
Do I need to email my clinic and ask them about organising a second opinion from Prof Harrison?
This site is amazing I wonder how long it has been set up and how patients with such a rare disease coped before.