I am now officially part of the MAJIC trial but was allocated best available therapy rather than ruxolitinib. However, because I am suffering horrendous mouth ulcers while taking hydroxycarbamide, I am going to be taking interferon as from 14th February.
I have been given some information by the hospital and am going back on 14th February to be shown how to use and store it. I have done some reading and understand that the side-effects can be quite difficult to cope with and I was wondering if anyone would be willing to share their experiences with interferon?
I would be particularly interested to know whether it did impact on your ability to drive and, if yes, how long was this a problem for? I'm also interested to know what impact it had on your day-to-day lives and how bad the post injection 'flu like symptoms' really are?
I am not really looking forward to learning to inject myself but am sure I will be able to cope - I've injected loads sheep and cattle over the years with no problems at all!
I have asked for an injection pen because my main concern is that I might inflict pain on myself by not pulling the needle out straight!
Does anyone else use a 'pen' and, if so, how do you get on with it?
Really, I'm interested in any information about interferon that anyone is willing to share!
Thanks in advance,