Maggies

[MancMermaid]

Hi. Does anyone attend / get support from Maggies? I keep thinking about going / finding out about support but just worried they won't know much about PV/blood cancer etc and/or I won't meet thei criteria.

I have the same sort of question re any other help from specialist nurses etc??

I know I've only had one appt at the Christie (next t/c appt next week), and everything is so up in the air/unknown, but I feel so completely alone, really want some support but don't know where to go / how to get it?

Thanks

[grandpa101]

hi I have attended my local maggies just recently lovely understanding people who put me completely at ease very well worth a visit

[Bridie123]

Hi , I don't know anything about magpies, but macmillan nurses gave me a lot of support when I was lost with it all.

[Tatatootoo]

my gp suggested I go and introduce myself. I was unsure but did. They are fantastic people very friendly and a gentle talk with them put me at ease. I had several open appointments with them for guidance and since fundraised for them. Supportive talking great guidance was what I needed

[MariaB27]

Maggies is brilliant, just go you will be so pleased you did, so welcoming x

[Fika500]

Maggie’s is well worth visiting . .. you’ll wish you’d gone earlier!

If you need more info/ support specifically related to MPN look at MPN Voice website

or

bloodcancer.org.uk/about-us...

[Gipsy123]

Maggies is worth a try. They vary, but having a place where you can share what’s going on in your life helps.

[RazB]

Hi there, it’s horrible feeling alone with this- I was in exactly the same boat when I was diagnosed and it was frightening. I haven’t heard of Maggies but for all the latest info on MPNs and empathetic listening & support try MPNVoice. Fantastic charity (I worked for them a few years ago!) and they run forums across the UK. The forums are a really good way to meet the doctors, nurses, other patients and get up to date info on everything. They run a buddy system too which can be really helpful.

mpnvoice.org.uk