Peg supply update Guys: I’ve just had a face to... - MPN Voice

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Peg supply update Guys

Threelions profile image
7 Replies

I’ve just had a face to face at Guys. No injections in stock so told to double up the last dose I have at home( 45-90mg) which will give me a 2 month gap (instead of the 45mg monthly that I’ve been used to). That’ll buy me an extra 4 weeks & then see what supply is like then in 8 weeks.

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Threelions profile image
Threelions
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7 Replies
Solyesh profile image
Solyesh

Did they discuss temporarily switching to Besremi during the shortage now that the NHS has approved such a move?

Threelions profile image
Threelions in reply toSolyesh

No. Said that will be looked at in 7 weeks if there still isn’t any peg supply.

Mishie14 profile image
Mishie14

is there a difference getting vial vs pen? I am in US using 180 mcg vial peginterferon for 18 months, sourced through local hospital pharmacy. I continue at weekly 90 mcg with no supply interruption. The box has been labeled made in and shipped from Germany. I have to be very careful storing vial in frig and using alcohol pads on skin at injection site, cleaning vial after use and again before second d use. The syringes are readily available at local drug store. Less costly than from hospital pharmacy.

AndyT profile image
AndyT

I’ve recently made the same move from 45mcg every four weeks to 90mcg every eight weeks. Blood tests after the first cycle were fine, so it seems to be working, and no side effects from the higher dose.

Hope it works OK for you too.

Threelions profile image
Threelions in reply toAndyT

Yes, hoping ok as may (moving forward) allow for 1 injection every 2 mths which would be great.👍

BloodyMPNS profile image
BloodyMPNS

I now take 90 mg every 4 weeks and have 2 left. The double dose made me really tired all weekend but is worth doing to make it last longer. Mel x

light profile image
light

Hi, same for me!

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