From our friends at Patent Empowerment Network. A very nice summary of how to improve MPN patient care.
powerfulpatients.org/2024/0...
There is a lot of good information packed into a very short presentation.
Key takeaways
1. Shared decision making is critical.
2. Hearing the patent leads to better outcomes - better doctor patient relationships - better treatment adherence.
3. One size does not fit all in MPN treatment.
4. Collaboration between MPN Centers/Specialists and community-based providers is essential to care.
5. Considering how to use MPN Specialists as part of the care team.
6. Including the family support system in MPN care.
Be sure the check out the Resource Guide. It has superb guidance for providers and patients to consider. powerfulpatients.org/wp-con...
It is reassuring to see such good thought put into managing MPN care. This is the quality of care we all deserve and should advocate to receive.
Wishing all of you all the best and success on your MPN journey.