Optimizing Care: Integrative Oncology in Myeloproliferative Neoplasm

[hunter5582]

Very interesting article in Springer Nature regarding Integrative Onclology interverentions for MPNs. It is helpful to see a review of evidence that support the positive experience some of us have experienced using some of these interventions.

link.springer.com/article/1...

[AndyKay]

Great article. Thank you for sharing.

[gardner99]

Very interesting, thanks for sharing.

[Gaithersburg]

Thanks, Hunter - that was a very interesting read.

[Loubprv Volunteer]

Thanks Hunter. Excellent article I ve been banging on for years - in Mpn forums as well - about the positive effect good lifestyle and diet can have on mpn patients

Exercise ( brisk walking and hiking does it for me and I notice the difference if I don't) and good homemade food ( not processed inflammatory rubbish) I don't drink coffee or alcohol. Don't miss either.

I m experimenting at the moment with an olive oil very rich in polyphenols ( Dr Sarah Brewers for anyone who's interested) but to be honest, it's so bitter it's quite hard to stomach, even on food!

Re Ruxolitinib we are told that that we will put weight on but not WHY.

This is because Rux limits the production of leptin, which governs, mainly, appetite. Suggest anyone reading this googles leptin and Rux.

Therefore basically it insidiously increases appetite in patients and we sneakily eat more if we're not careful

If I d been told that in the beginning it would have been useful.......and I wouldn't have gained 7 lbs!! Hard to lose when you're 71.

Best wishes

Louise

[ainslie in reply to Loubprv]

I think it varies, my appetite has not increased on Rux , tendency to increase weight yes, if I allow it

[JustKeepSw1mming in reply to Loubprv]

Hi Louise,

I agree about Rux. My hematologist warned me that I might put some weight on, but he couldn't tell me exactly why. If you know the reason, it's easier to control the increased appetite (or for me, rather not having a sensation of being full).

Take care.

Mary

[kamiilos]

Thank you for sharing Hunter. Happy to find out more avenues I can do to be better. Gotta try yoga sometime and I like the caffee paragraph.

Wishing you well.

[ainslie]

great article, it’s incredible that us humans including most of the medical profession have forgotten the basics which have been around forever as in “you are what you eat” (or put in your mouth) and “use it or lose it” as in keep moving, that was natures plan for us, we are designed to run on healthy food and we need exercise. Most countries health services can’t cope with the long waiting lists they have, certainly in UK anyway, but very little is said by the medics or government about eating better and exercising more, I suspect if most of the public did that we would not need so much medical intervention, seems like common sense but nothing gets done about it, anyway good article

[KLCTJC]

I agree. I have changed my diet and increased exercise and it has improved my life. And for me unlike the PV or the MS I can control it. Feels good to have control over something and see the positive effects.

[Jazzman7]

I’ve been using an IO approach for 2 + years, partnering with my oncologist. Particularly helpful to me has been juicing, exercise, vitamin D, turmeric, and spirituality. I’ve reduced HU intake from 500mg/2X daily, in fall of 2022, to one 500mg M-Th. Platelets down 33% to 444-and stable. I know everyone is different, yet for me, this approach has helped a lot, in my opinion. Having a positive partnership with my oncologist has been essential. I’m 76 years old, M.

Thanks for referring this paper!

All the best.

[light]

Hi there, I would welcome this combination of care in UK to be accepted by our MPN care, medical professionals. Wishing you well.

[JustKeepSw1mming]

Thank you very much for sharing Hunter!