Any connection ?: I'm wondering if there is a... - MPN Voice

MPN Voice

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Any connection ?

Mostew profile image
10 Replies

I'm wondering if there is a connection between platelets and underactive thyroid / hashimoto. Don't mean thyroid is causing platelets to be high ,but if levothyroxine needs increasing that may help lower platelets.

I have appointment next week and will discuss

Meanwhile thoughts welcome

I'm not good at reading academic studies .

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Mostew
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10 Replies
Pachena profile image
Pachena

I don’t know tho I was diagnosed with Hashimotos in 2010.

Be interesting if there was a link.

I haven’t needed medication yet tho they said I will soon.

Mostew profile image
Mostew in reply to Pachena

Hard to know what symptoms are caused by what. Suprised if you have hashimoto you havnt been recomended meds Im wondering about possible connection as rather try taking more levothyroxine than hydroxicarbamide.

I

Pachena profile image
Pachena in reply to Mostew

They monitor my hormones regularly and I don’t need the assistance yet tho they said not long.

Hope you can get some info 🤗

ETket profile image
ETket

My blood tests for ET also revealed an underactive thyroid…

ChillyAsh34 profile image
ChillyAsh34

I have had underactive thyroid for 43 yrs and ET for 3 yrs so I am thinking if thyroxine lowered platelets I would not have had high platelets 3 yrs ago to diagnose ET I have taken thyroxine for the 43 yrs it was my yearly blood test for thyroid function that showed high platelets

Cokopops profile image
Cokopops

Snap. I’ve been on thyroxin for 20 years and diagnosed with E T 4 years ago, so no connection in my opinion.. all those pills! If you shake me I rattle 😂

AndyKay profile image
AndyKay

I would be very interested to know if there’s a connection. I was on Levothyroxine when supposedly started my ET.

Norma1831 profile image
Norma1831

I hope your medical consultation goes well as in my experience good medical support may be required to manage the additional challenge of fatigue when taking Levothyroxine, a thyroid hormone supplement, combined with Hydroxy daily for ET. I had managed fatigue associated with ET relatively well but experienced deep fatigue when taking Levothyroxine for the first time last year. The dose may require careful adjustment over time, with the support of your medical practitioners, to establish the appropriate level.

Mostew profile image
Mostew in reply to Norma1831

Thank you for your thoughts

I’m lucky not to be overly fatigued. Glad you have managed to find correct dose of meds

EANgardengirl profile image
EANgardengirl

I too have been on thyroid meds for 6 years and diagnosed with ET in 2021. Not sure if linked but meds have not decreased platelets.

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