MPN Voice are putting together a Patient Group Submission for a forthcoming appraisal by NICE, of Fedratinib for the treatment of myelofibrosis patients with an enlarged spleen or other symptoms.
Fedratinib has been available in England on a limited basis for the last couple of years but we’re hoping that the outcome of this appraisal will make it more generally available to MF patients in England who would benefit from it as an alternative to other treatments.
If you are, or were previously, being treated with Fedratinib we would be very grateful for any feedback you can give us on your experience of it. Any information used in our submission will be anonymous.
Please message me if you’re able to help us with this or if you’d like any more information about the submission and what we are looking for.
Many thanks
Andy Tattersall
New treatment options
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