Disappointed

[lizzziep]

I should have had a phone call from Guys yesterday about trial drugs but nobody called. 😞 maybe I’ll hear something soon.

[ainslie]

you could leave it another day or two and then chase them, who knows maybe off sick or something 🤞

[Spanelmad]

Maybe something has changed with the trial dates? I'd phone them.

[lizzziep in reply to Spanelmad]

I’ve emailed 😁

[Spanelmad in reply to lizzziep]

Good for you😁

[Threelions]

Hi

What is the proposed trial Lizziep?

Interested as I’m with Guys? Thanks.

[lizzziep]

There are two new drugs coming out for patients with MF and CALR mutation. Don’t know anything else.

[Spanelmad]

Wondered if they've contacted you?

[lizzziep in reply to Spanelmad]

No, nothing, very disappointed. I think I’ll email Professor Harrison to see if she can give me any information, also my telephone appointment in January has been cancelled.

[mhos61 in reply to lizzziep]

I’m sorry to hear of the issues you’re experiencing Lizzie.

I would definitely email Professor Harrison, especially with the holidays approaching. You need an explanation on both counts.

Good luck

[Spanelmad]

Sorry to hear that sounds like something's changed with the trial maybe?Definitely send the Prof the email.