Good news for PV patients

[JP1952]

Looks like NICE has approved ruxolitnib for PV patients in Wales and England.

[bruddery]

that is fantastic news

[hunter5582]

Very good news! Hopefully, Besremi will soon make the list too.

[AirconBob]

I saw Prof Harrison on Tuesday and did the preliminary tests. Fingers crossed!

Full details at novartis.com/uk-en/news/med... (If the link is allowed)

I think we all owe the Prof and her team our thanks for their efforts on our behalf.

[MWxxxx in reply to AirconBob]

Thank you, the link was really useful. What prelimiary tests did you need? My PV is not well managed on hydroxycarbamide as it does not seem to control my WCC at all. I have recently asked to be referred to an MPN specialist to discuss possible change in medication - I was thinking of interferon but I have some concerns regarding conditions such as lupus and sjogrens as both have been mentioned to me in the past as potentially a reason for some of my symptoms, although I have not been diagnosed with either. It would be interesting if there is a potentially another option to try.

[ainslie]

Great news, I think it is already approved in Scotland perhaps?

[Mazcd Partner MPNVoice in reply to ainslie]

yes it is and in N Ireland

[Mazcd Partner MPNVoice]

hi everyone, we have just released an update from NICE healthunlocked.com/mpnvoice...