Little bit of hope

[Nrl303]

I am very young compared to most people diagnosed on here, but this site has been so great & has given me hope that I can deal with this. I’ve learned so much as to how to cope / treat symptoms. Past Facebook groups I have been in just are complaining about symptoms & nobody has any suggestions to ease them which just made me think my life is gonna be miserable for the rest of my life, so I have directed them here. I am also hopeful for the future of better meds. Just glad to have found this site with great people.

[mhos61]

I’m so glad to hear that you have found hope for your condition through the forum. I’ve just read your initial post, and I’m so sorry to hear you have been diagnosed at such a young age.

Not sure if you’re aware, but MPN Voice have a blog for young people with MPNs. A young lady called Alice who also has an MPN is the administrator. It’s nice to have somewhere you can relate to people of your own age. I have attached the link below.

google.co.uk/url?sa=t&rct=j...

[Nrl303 in reply to mhos61]

thank you very much. I did join that group already as someone in the comments dropped a link. I appreciate the thought though 🙂

[mhos61 in reply to Nrl303]

That’s great! Xx

[hunter5582]

I am very glad to hear you are finding information and support here. That what we are all here for. I have had a rather interesting and unique health journey in the last several years. The forum has been a significant support through these various challenges that have come my way.

Looking forward to hearing more about your journey with a MPN. Wishing you great success.

[dbus1417]

This forum is exceptional. Knowledgeable people with unique insight and experiences. I have done a 180 about anxiety as it relates to my mpn. Based on what I see here, I feel like we will find a fix for these diseases in my lifetime and for that I’m grateful.