Advice please: Well I put a message on here asking... - MPN Voice

MPN Voice

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Advice please

Jewels707 profile image
2 Replies

Well I put a message on here asking for advice, only to have my post hijacked with something totally unrelated! I thought I had 6 responses but not at all. Please can people make their own post requests as I sorely need help with my particular problem. Thank you.

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Jewels707 profile image
Jewels707
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2 Replies
Aime profile image
Aime

hi, sorry to hear your last post was hijacked! I see you’re triple negative which is a difficult place to be. I’m negative but have too many red blood cells, so much like you, went through all the scans, etc which sounds like the same as you’re going through at the moment. I didn’t have a bone marrow biopsy.

Try not to worry, I know it’s hard! As far as I’m aware, I think it’s better to be negative to jak2, etc but I know how anxious a time you are going through. Try and take one appointment at a time. Go armed with written questions you need answers to and try and take someone with you, to help you remember what is said and for support.

I’m sorry I can’t give you the medical answers, but someone else on the forum will have the same experience as you and will help. Keep posting as you will get the support you need. I thought I would reply to you, just to let you know I understand your anxiety and how you are feeling, as it’s not a great time when you’re undergoing tests and waiting anxiously for results.

Kindest regards Aime.😻

Jewels707 profile image
Jewels707 in reply toAime

Thank you for replying Aime. X

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