jackafi

[JeanieRN]

On for 5 weeks at 5 mg twice a day. Fatigue, nausea snd insomnia. Hct today was 36.5 down from 39.5 from just 2 weeks ago! Hemoglobin 13.5 down to 12.5. Bilirubin up! Now thinking it was mistake to go off Besremi. My Hct/hemoglobin was stable on Besremi. I stopped due to anxiety and depression and hair loss. I also have other autoimmune diseases, but they were stable on Besremi aside from the hair loss. Alopecia areata. See my mpn specialist tomorrow. Thinking I should take a break from Meds and then work on med for depression/anxiety. Thinking it might be best to restart Besremi after Hct rises, considering I was at 50 mcgs every 2 weeks. Never felt this bad on Besremi. ☹️. Hair loss is better than feeling like crap and unable to work. I have only been dx wth Mpn for 13 mons. So much to take in and consider!

[ainslie]

if you decide to stay on Rux you could reduce the dose if agreed with your doc, eg split a 5mg so you are on 5mg+2.5mg, you would most likely see your reds rise a bit