chills

[Cat1001954]

hi all Iv felt bit shivery and tired last few days got appointment on weds with my consultant first time Iv felt like this since diagnosed last august anyone else felt this please

[hunter5582]

Chills can occur due to MPNs or some of the meds used to treat. I am sure you will find others with the same experience. I experienced cold-intolerance when my iron levels got very low due to the venesections.

[Cat1001954 in reply to hunter5582]

thank you hunter

[Ratton]

Yes I must say that I have been feeling like yourself (have E.T)- am taking aspirin and Anagrelide and have been for 3 years- but last few weeks have felt v.cold suddenly- although am dressed correctly. Tiredness also - no energy. Light headedness.

Having blood test next week and speak with Haematologist after that so perhaps I will get an answer.

Hope you will feel better soon.

[Cat1001954 in reply to Ratton]

thank you Iv got triple negative ET and I’m talking to my heamatologist at tomoro appointment wishu better too and thank you for replying

[Ovidess]

I have few traditional symptoms of PV, but have noticed frequent sensations on the outsides of my arms and around my torso of a feeling akin to being cold. It is more a tingling, as if just the surface is iced over. I wonder if some people call this an itchy feeling, some burning, some cold. Sensations can be so hard to describe accurately, and perhaps we perceive them very differently.

[kitttycat]

Hi I was just typing out a note to you and it disappeared - I get spells some times of coldness and shivering - I dont know when this will come on, it just does. This only started after I was diagnosed with essential thrombocytosis and started hydroxyurea. I just accept it - I have to wear big sweaters at times and also to bed at night. I sometimes have to wear a mask when I sleep because my nose gets so cold. I started to take vitamins with iron and feel less tired and i think this all helps. The doctor at the walkin clinic said I had a chemical imbalance - which could be possible with having a disease and taking toxic medicine, but I dont know if it is. I make a point of dressing warmly and not thinking of this. The best of luck to you.

[Cat1001954]

aww thank you mine comes and goes it’s like having flu but being cold. No no temperature I wishu well on your journey x

[Stilletto]

Hi Cat1001954I have in fact been shivering with a low grade fever just this week. Also have ET with Jak2. I was diagnosed in Jan.2023 and I'm 76 yrs old. My treatment has been daily hydroxy U 500 mgs along with a baby aspirin every other day. I'm scheduled to meet with my heamotologist next week. My platelets are back within the normal range as of this week as per my weekly blood draw report. I'm also experiencing bone pain and insomnia. I've led a pretty normal life prior to this week but it seems my body is rejecting the HU?

[Cat1001954]

oh sorry to hear that hope you get sorted out yes I’m 69 and was diagnosed last august I have had chills and bone pain I just get in bed under the covers and take paracetamols. Wishu better x