autoimmune mf (AMF): Is anyone diagnosed with this... - MPN Voice

MPN Voice

10,722 members14,842 posts

autoimmune mf (AMF)

Bakerloo73 profile image
1 Reply

Is anyone diagnosed with this ? Were you misdiagnosed with primary MF before that? How did you get a diagnosis of AMF?

My consultant said there is no test for it but I have read articles that say diagnosis is possible and prognosis is better.

Thanks for any advice.

Written by
Bakerloo73 profile image
Bakerloo73
To view profiles and participate in discussions please or .
1 Reply
artydutch profile image
artydutch

it was a consideration in my diagnosis, but the presence of 2 mutationS, jak2 and DNM3A changed it to PMF. I have also got sarcoidosis hence the initial suspicion. Good luck.

Not what you're looking for?

You may also like...

Symptoms with MF

Hello My husbands initial diagnosis of CMML has now been changed to primary myleofibrosis. He has...

Pensive and emotional (MF)

Hi Everyone Happy Wednesday! I'm just out for a day to Brimingham. Looking at the landscape as I...

Life expectancy with MF

Hello, all. I was diagnosed with post ET MF in 2019, after having been diagnosed with ET jak 2 in...

ET & MF

Hi Folks Question I keep forgetting to ask my Haematologist. Diagnosed with ET in April and then...

Recently diagnosed with MF

I've came looking for support on the new me. I've slowly been telling my family about my...