Finally: Blood results today show a platelet count... - MPN Voice

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Finally

ciye profile image
ciye
26 Replies

Blood results today show a platelet count of 550, it's been 18 months since they were that low. I do hope it's not a blip.

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ciye profile image
ciye
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26 Replies
Hopetohelp profile image
Hopetohelp

Great news. Lond may it continue x

EPguy profile image
EPguy

What medication are you on that is working so well?

ciye profile image
ciye in reply toEPguy

Hydroxy,

hunter5582 profile image
hunter5582

Good news! Hope the trend continues.

lizzziep profile image
lizzziep

Good! 😁

Threelions profile image
Threelions

Really glad to hear. Long may the trend continue 👍👍👍

LittleLuna profile image
LittleLuna

fantastic news

Mostew profile image
Mostew

Glad to hear your good news.

Hocus58 profile image
Hocus58

Great news 👍

Buddhability profile image
Buddhability

so happy for you!!

😊

🙏

Cja1956 profile image
Cja1956

Great news!

Smoothie2020 profile image
Smoothie2020

Awesome!

JeanieRN profile image
JeanieRN

that’s great!!

Meatloaf9 profile image
Meatloaf9

Excellent! Long may it continue, best to you.

Barbiebreath profile image
Barbiebreath

Really glad to hear your good news!

Mardihel profile image
Mardihel

Great news does anyone know what the normal range is now, I'm happy with mine around 488 I'm on hydroxy, my haemo keeps saying she wants it lower, I'm determined not to take any higher dosage of hydroxy (chemo) , thank you for any advise.

ciye profile image
ciye in reply toMardihel

When I spoke to Professor Harrison she said anything under 500 was good, my heamotologist agrees. I am on 14 hu a week which is more than I want to take if I can get my counts stable I will look at trying to reduce that.

Mardihel profile image
Mardihel in reply tociye

Thank you so much for that information, makes me feel a whole lot better.

Mardihel profile image
Mardihel in reply tociye

Also professor Harrison where is she based are you in the UK?

ciye profile image
ciye in reply toMardihel

Yes in the UK. Guys and St Thomas

Mardihel profile image
Mardihel in reply tociye

Thank you x

EPguy profile image
EPguy in reply toMardihel

In posts here we've seen a range of 450 to 600. 600 was a common limit in the past and some Drs still use it. As Hunter has said, how fast it's changing is also important along with the actual number.

If you're going to have adverse reactions at higher HU it is a good question how important that last bit of PLT is.

Wyebird profile image
Wyebird

thrilled for you, please remind me what quantity of meds are you on?

ciye profile image
ciye in reply toWyebird

At the moment 2 hu daily

Wyebird profile image
Wyebird in reply tociye

hope it continues or it gets lowered.

IrishSarah profile image
IrishSarah

That’s great news! Delighted to hear it 💚

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