I have been posting about my experience with STV and just wanted to update everyone.
I was seen by cardiology yesterday and it was confirmed it is STV I have been experiencing. The treatment I have opted for is catheter ablation. Unfortunately there us a 6 month wait for treatment here in Scotland π I have been prescribed Bisoprolol in the meantime and I am hoping this will settle my symptoms till I get a date for the ablation.
I asked both the cardiologist and my haematologist if low iron/ferritin levels my make cardiac arrhythmias worse.
I didn't really get a straight answer from either π€
Although I have has this before my diagnosis of PV a year ago, the STV has got so much worse this year following venesections π€·ββοΈ so who knows.
Take care all π
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Mauritiu
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I also have PV and an arrhythmia, I had what was paroxysmal atrial tachycardia. I avoided using any beta blockers due to a prior negative experience with atenolol. I opted for a calcium channel blocker, diltiazem. This was much easier to tolerate. However, I was already somewhat constipated from being on hydroxyurea at the time. The diltiazem significantly exacerbated this adverse effect. Ultimately, i opted for a catheter ablation. The surgery was successful, mostly resolving the tachycardia. I still get occasional low-grade episodes, but nothing like what i experienced before. I am very glad I opted for the surgery,
You are correct to think that low iron can impact cardiac function. This is well known and readily available information in the literature.
"Too little or too much iron has detrimental effects on the body and can lead to arrhythmia and blood pressure anomalies. Chronic heart failure patients are more prone to iron deficiency" world-heart-federation.org/....
"Various ECG abnormalities have been described in the cardiomyopathy of iron deficiency. Sinus tachycardia and LV hypertrophy are common." ncbi.nlm.nih.gov/pmc/articl...
I do continue to monitor my heart rate with two devices. I have a Samsung Gear smart watch that monitors heart rate and can take a single lead EKG. I also have a Kardia device that can take a medical grade 6-lead EKG. If I do have an episode, i run my own EKG and review the results with my cardiologist and GP. The device only costs $129.00 and is well worth the investment.
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