Update: I've just had phone hospital appointment... - MPN Voice

MPN Voice

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Update

Mostew profile image
13 Replies

I've just had phone hospital appointment Dr. Said bloods perfect!! My platelets are now 520 .

I thought they would want me to up hydroxicarbamide slightly to get to under 400 so pleased they agree with me( for once!!!!)

Still taking hydroxicarbamide 500 every other day

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Mostew profile image
Mostew
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13 Replies
Exeter21 profile image
Exeter21

brilliant 👍

Cat1001954 profile image
Cat1001954

great

Poppy6060 profile image
Poppy6060

good news

Cja1956 profile image
Cja1956

Great news!

hunter5582 profile image
hunter5582

Definitely good news!

gilded profile image
gilded

Hip hip hurray!

tree_top profile image
tree_top

so happy for you!

TLJ-1 profile image
TLJ-1

Ahhh! The vagaries of the medical profession! At 540, my oncologist thought I should up my HU dose a bit, although I started out at nearly 1200 a few months back. Actually, I had already increased my dose before I talked with him. Take care of yourself! If your Hb and all your WBC counts are in the normal range, you could cautiously increase HU slightly. But it is not worth it if RBC and WBC are not in the normal range: 520 is not too bad.

Mostew profile image
Mostew in reply toTLJ-1

Thanks for your thoughts. I believe some doctors reckon 600 is ok if no symptoms . Others under 400.

For me ,less meds the better . As long as I have regular blood tests to check platelets not creeping up.

Meatloaf9 profile image
Meatloaf9 in reply toMostew

Hi, sound good. I think its best to find a Doc who is excellent and then just follow their directions. If they don't know better than us, who does?

Mostew profile image
Mostew in reply toMeatloaf9

I believe that we are an equal in the patient Dr. Relationship. No matter how good professionals are we are all different .

georgevanier profile image
georgevanier

Wow, Great News!!!

Director1157 profile image
Director1157

Good to hear Mostew.... Great news

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