thank you all

[Superwoman]

Hi my MPN friends

Thank you all for your lovely support on my last post re my last Haematology appointment.

Well I did get a telephone call from a Haematology nurse today, she was very sorry to hear about my experience with the doctor last week, she has now put in place that hopefully I will get to speak to a more experienced Haematologist, hopefully one who I have seen and get on with really well but is now at Kings but does cover some of my Hospitals patients to help out, if not him then a senior Haematologist. She did say that bloods were all normal range and were really good, which if he had told me that I would of not been so stressed out.

So will have to wait and see, next appointment is March the 1st 2023 so now four months instead of three, and hopefully I will then get to speak to the same Haematologist and get that consistency back.

Take care my friends and thank you for listening to me moan.

Jean AK Superwomen 🦸‍♀️ X

[Mostew]

So glad you found Nurse helpful. I find they are best to speak to with any concerns in between appointments , so don't hesitate to ring . Even if it's something you consider silly.

[Loubprv Volunteer]

morning Jean - so glad you re feeling so much more positive and that someone is finally taking notice! You weren’t moaning at all, just letting off a bit of steam and we all need to do that occasionally. Only those of us in the same boat know how you feel - so we re all out here nodding our heads.

Love from a VERY wet south Cumbria. Even the dog wouldn’ t go out this morning. 😳 Would be very nice to chat maybe one of these days. Not as a buddy because you have ET and I have PV but sometimes we all need a natter. No worries if not! Maz has my number if you d like to. Otherwise we might meet at the next patients day. Louise xx

[Superwoman in reply to Loubprv]

Hi Louise, what a lovely part of the country you live in, I had a friend who lived in a place called Mallerstang, Kirkby Stephen, Cumbria, she had a b and b for walkers on the moors, sadly she passed away earlier this year, also with a rare cancer, but the views from her house were just amazing, and the peace and quite was something else.

I live down in Bromley kent, although we are classed as a London Borough, which is not good as our Mayor wants to bring in the congestion charge of £12.50 every time you come off your drive, if you live in a London borough that borders the M 25 which is a bit of another worry, especially having to go to hospital appointments and shopping.

Right at the beginning of my diagnosis back in 2013 I did have a buddy, but unfortunately she moved and I never got to speak with her again, which was a shame, it always made you feel that you were not alone and that there was others out there who had the same complaint, have only been to one forum at Guys where I met some lovely paople one being Maz with her lovely coloured hair.

The nurse that I spoke with yesterday at the Haematology dept, her dad has ET first one I have come across at our hospital. Another friend was diagnosed with PV a couple of years ago, but I feel he is in denial over it all, and have not spoken with him for some time, so do not know how he is doing, told him about our forum, but he was not interested.

Anyway thank you for your kind words, hope this heavy rain stops soon, makes me laugh Thames Water have sent out an e.mail to us to say we still have a hose pipe ban. 🤦‍♀️My water butts are overflowing so do not think I will be watering the garden this time of year 😂

Take care

Jean x