newbie: hi I’m newly diagnosed in august have ET - MPN Voice

MPN Voice

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Cat1001954 profile image
27 Replies

hi I’m newly diagnosed in august have ET

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Cat1001954 profile image
Cat1001954
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27 Replies
hunter5582 profile image
hunter5582

Hello and welcome. Glad you found your way here.

Cat1001954 profile image
Cat1001954 in reply tohunter5582

thanku

Mazcd profile image
MazcdPartnerMPNVoice

hello Cat1001954, welcome to our forum, we have lots of information on our website mpnvoice.org.uk which will help you, so do have a look. Best wishes, Maz

Cat1001954 profile image
Cat1001954 in reply toMazcd

thanku maz

Cat1001954 profile image
Cat1001954 in reply toMazcd

hi max d do you know if it’s safe for me to allow my hubby sex without a condom I’m 68 so no fear of pregnancy I’m scared the drug will harm him through my fluids not to be crude

Mazcd profile image
MazcdPartnerMPNVoice

which medication are you taking?

Cat1001954 profile image
Cat1001954 in reply toMazcd

hi hydroxycarbamide

Mazcd profile image
MazcdPartnerMPNVoice in reply toCat1001954

the advice we have on our website is: If you are sexually active during this course of treatment, you need to use a condom. This is to protect your partner in case there is any chemotherapy in semen or vaginal fluids.

Cat1001954 profile image
Cat1001954 in reply toMazcd

ok thank you

jodary profile image
jodary in reply toMazcd

I asked my haematologist this question when I started treatment and she said it was fine without . So now I am concerned !

Cat1001954 profile image
Cat1001954 in reply tojodary

my hubby does not like condoms neither do I do what do we do spend the rest of our life using them ? We hate them

ciye profile image
ciye

welcome. Y

Cat1001954 profile image
Cat1001954 in reply tociye

thank you

JeniMac profile image
JeniMac

Hi welcome to our group. Everyone is so friendly and helpful. Great for advice from others who know what you are going through xx

Cat1001954 profile image
Cat1001954

thank you all so much c

Mostew profile image
Mostew

welcome .

Hope you find this forum as much of a comfort as I do.

Never feel a question / ramble is silly. You will get great advice and support

Cat1001954 profile image
Cat1001954 in reply toMostew

thank you so much

Oscarsboy profile image
Oscarsboy

This is the most helpful and informative site you can find and I am sure you will find it of great benefit.

Cat1001954 profile image
Cat1001954 in reply toOscarsboy

thank you so much

nightshadow profile image
nightshadow

Welcome to the group. I found it to be very helpful and reassuring after I was diagnosed.

Cat1001954 profile image
Cat1001954 in reply tonightshadow

thanku

AndyKay profile image
AndyKay

Welcome to this group. I hope you find this group very informative and you learn a lot about this disease. This group is amazing because we come from many different backgrounds and I love to hear what others have to say about ET.

Cat1001954 profile image
Cat1001954 in reply toAndyKay

thanku

JaK2ET profile image
JaK2ET

Welcome to the forum!

Cat1001954 profile image
Cat1001954

thank you

Solyesh profile image
Solyesh

Cat - welcome! Sorry you had to join the exclusive ET club but you found your way to an amazing resource here.

All the best

Cat1001954 profile image
Cat1001954 in reply toSolyesh

thank you so much

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