Is this normal

[JeniMac]

I hope all is well with everyone

I don't know if anyone will answer the question as it's a bit personal and don't even know if it's normal but here goes. I am suffering from horrendous passing of air. It can be rather embarrassing and wondered if its normal and if so what do others use or do to illeviate it

Thanks

[Otterfield]

Are you on Ruxolitinib? Flatulence is a side effect and I had some really embarrassing moments!

[JeniMac in reply to Otterfield]

Thank you for your reply I'm on Anagralide but changing to Pegylated Interferon next month. I have been a windy person for a long time but it's defo getting worse. Do you take anything to help

Thanks

[Inca in reply to JeniMac]

oh yes ! It’s normal.I have found Rux worse than Hu since I changed to it 4 yrs ago.,as Jennie said. A very careful diet helps I think,no spicy stuff or cream etc,not the complete answer sorry.It is normal for all humans & animals to pass wind ,I don’t know why it has to be embarrassing.

Just in ‘passing’ if my horses didn’t pass wind regularly they would be in big trouble & so would we. Try not to worry ,just makes things worse.

[JeniMac in reply to Inca]

Thank you I know its normal but sometimes you can be in an embarrassing situation hope your well

[Inca in reply to JeniMac]

I really do understand your embarrassment & concern,it is something we have to cope with unfortunately. Last week in a supermarche I was browsing the feminine ranges of the masses of stuff we have here & I noticed a product called ‘Shreddies’.Reading the labels it obviously is a panty or panty liner for those who suffer from flatulence. I don’t know if they help or if they are available in U K. Maybe on line even ,I have not tried the use of it so don’t know if helps our problem. I work from home & keep well away from everyone except close friend s,since Covid,they understand my various probs,like suddenly hitting the brick wall,brain fog etc.Have a search for the product ,let us all know about it ,I should have tried but I didn’t I try not to think about it all.Very Best to you ,Sally

[Otterfield in reply to JeniMac]

I just lived with it ( hoping that anyone around would assume it was my husband! 😁).

[JeniMac in reply to Otterfield]

love it 💖

[Wyebird in reply to Otterfield]

🤣🤣🤣

[hunter5582]

Flatulence can be caused by a number of things. Medication side effects is one of them. Anagrelide has flatulence listed as a common side effect.

online.epocrates.com/drugs/...

Folks who are prone to windiness may also have issues with their microbiome. Some find that probiotics help. Good thing to review with a GI-doc or a naturopath or Integrative/Functional medicine doc.

You may find an improvement just by switching to PEG. as planned. hope the change goes well for you.

[JeniMac in reply to hunter5582]

Thank you. I'm hoping Peg works for me and thanks for all your knowledge your very helpful

[Wyebird]

haha it’s horrid isn’t it. Fir me when it comes it’s a constant stream. for what seems minuets. Mine is down to laprozole. It is for acid reflux

[Inca in reply to Wyebird]

You are right I think .I have Omeprazole ,I try not to use it unless I know I have eaten something I do not normally ! Wine is another no no for me ,very difficult in France to say no to Fr friends.!

[Wyebird]

haha eating outside is popular isn’t it. Maybe do that and wait for a passing car🤣

[veryoldman in reply to Wyebird]

Or a long, noisy, slow moving freight train nearby....completely uncontrollable and often connected to GRED. Very little warning....I desperately try and avoid crowds and such where I have little control, especially when we eat out, but I'm not always successful. My wife is a supportive Saint, but it still embarrasses me beyond the imagination. Hydroxy, by the way.