Dentists with pv

[Mandz12]

hi all 1st appoitment with my dentist since being diagnosed. They say i need a filling but had to phone my consultant first incase of any issue. My key worker phoned and said i have to have my bloods done for a blood count then they will contact my dentist . Its so complicated !!!

[LittleLuna]

hi. I have an appointment in Dec and asked haematology advice who told me no problems, go ahead.

[hunter5582]

i have never meeded to do that for routine dental work. Only for major surgery. Not sure why they want you to do labs for just a filling.

[Mandz12 in reply to hunter5582]

my point exactly x

[jillydabrat]

wow! For a filling? I have had lots of dental treatment and never had to consult with my haematologist but i did have to have my INR done for an extraction because I am on warfarin. Whether it’s because I am on Hydroxy, and have been for 8 years now, I have Osteoperosis and needed an infusion treatment to try and stop any more bone loss. If you have any extractions whilst on this infusion treatment it may cause necrosis of the jaw. Because my bottom front two teeth were only sitting in 10% of bone (again bone shrinkage because of Hydroxy) I had them removed. Hydroxy has done wonders for my red blood count but terrible for my bone density.

[Mandz12 in reply to jillydabrat]

i am currently on hydroxycarbamide aswell.

[Loubprv Volunteer]

Totally unnecessary I would have thought unless you re having an extraction.

However on the bright side it sounds as though you have a haematologist who is looking after you Louise x

[Hopetohelp]

if just a filling then I have just carried on as normal as if I didn’t have an mpn.

[Mandz12 in reply to Hopetohelp]

they contacted my doctor and asked them for advice x

[Inca]

Yes Our Dentist needs to speak with my consultant.I am P V Jakafi & meds for a stent.They need to know that they are safe treating patients & that we too are safe.

[mark382]

ive had PV for 14 years on aspirin and venesections. Never had a problem with fillings.

[finlay2106]

It does seem over the top. I have PV, take Hydroxycarbamide and low dose aspirin (you don't say what meds you're on) and had recent root canal work and crown with no bother and no checking with haematology. Your dentist should be checking what meds you're on but I suppose better for the dentist to be over-cautious rather than completely disinterested. If on aspirin you do have to be careful about taking ibuprofen but paracetamol is ok. You do though have to discuss with haematology and surgeon if having any type of surgery. If first appointment since diagnosis then maybe bloods are not yet stable and everybody is being careful.

[Mandz12 in reply to finlay2106]

clopidogrel and hydroxycarbamide

[Cja1956]

i’m so glad you brought this up. I just found out I have to have two extractions. My dentist sent a form to my hematologist for her permission. The dentist told me I should stop taking baby aspirin a week before the procedure and my hematologist agreed. I’m a little nervous about it. I’m having it done in a couple of weeks.

[Mandz12 in reply to Cja1956]

you will be fine x

[Superwoman]

gosh never had to do that fir a filling, had a tooth extracted recently also a good clean and Polish as long as your dentist is aware of your condition mine being ET should not be a problem and all went smoothly.

Although it does not hurt to ask your Haematologist mine just said as bloods were all in the normal range he could not see a problem with extraction, as long as the dentist was aware of my condition which he was.

Jean

[Meatloaf9]

I have had a filling and a crown since my PV Dx last year. No problem. MPN specialist said it was ok to have minor surgery without needing a blood test (colonoscopy, EGD, skin cancer). Blood tests have been reasonable, no thrombocytopenia, never stopped aspirin. You should be fine, I would not have extra blood tests if past results were fairly normal. I am not a hematologist so this is not advice, just what I would do and have done. Best.

[Mandz12]

got back to me today said my platelets was 365 so i had to stop colopidigrel for 7 days before the fillings. X

[Rem31]

Your experience does seem very over the top but I can understand your dentist wanting to be cautious in the face of a rare condition.

I’m having an extraction next month by hospital dentist as my local dentist won’t do it on account of my ET and another medical issue. Haematology say it’s usual to stop aspirin 5 to 7 days ahead of an extraction but the hospital dentist said they now don’t tell patients to stop taking beforehand. They’ll use extra packing.

I’m a little confused by the difference in advice but not overly bothered. It’s not a huge procedure but as I’m considered high risk for a thrombotic event I’ll probably go with the hospital dentist on this one.

[Grendall in reply to Rem31]

hi Rem31

I am too going through the same thing. I have never been a fan of dentists, a general fear of choking. I recently had an abscess and my dentist recommended tooth extraction, he then called me to say due to my condition (ET) he didn’t want to do this with the anaesthesia I have and would write to the hospital for them to do it. I went for a consult at an NHS dental today due to me wanting the anaesthesia, when this dentist read my medical notes, he wasn’t concerned about the aspirin but the risk of bleeding, therefore, he wouldn’t do it so is now writing to the hospital again where they can get bloods checked etc but said there is a long wait…🙄🙄😟 bearing in mind I am terrified of dentists, I am willing to wait now I have got rid of the abscess with the antibiotics, one less thing to think about right now as my body appears to be going through the mill anyway at the minute with symptoms/side effects etc… watch this space!

[Rem31 in reply to Grendall]

Yes, by the time my tooth comes out I’ll have been on the hospital dental clinic waiting list for close to 6 months. No joke!

[Mandz12]

at least the hospital can do it i take clopidogrel instead of asprin. Hope all goes well. Xx

[Rem31 in reply to Mandz12]

Thanks, I just want it over and done with!