Beta Alanine to relief itching for PV - MPN Voice

MPN Voice

10,835 members15,132 posts

Beta Alanine to relief itching for PV

william-Indo profile image
10 Replies

does any fellow PV has tried Beta Alanine to relief itching...?

it is working...?

Written by
william-Indo profile image
william-Indo
To view profiles and participate in discussions please or .
10 Replies
21Rosie profile image
21Rosie

Yes yes yes…….Recommended to me by my haematologist.

1/2 teaspoon in water prior to showering. It’s an amino acid and completely tasteless.

Works a dream for me and now that we are in winter (I live in Australia)

I haven’t taken it for the last couple of months. I think the summer heat and humidity aggravate the itch. OTC preparations just did nothing for me.

Do hope it works for you as this condition is just awful.

All the best

Rosie

william-Indo profile image
william-Indo in reply to21Rosie

Hi Rosie,

Thank you for your update.

I read about it in journal.of Australian MPN Advocacy.

Do you take it or just mix into the water..?

21Rosie profile image
21Rosie in reply towilliam-Indo

Hi WilliamNo just in glass of water.

My husband has an auto immune issue which causes him intense scalp itching and his dermatologist has tried so many different lotions etc to no avail. This week I said he should try BA (nothing to lose ) and so he is taking it twice daily for the last week.

There definitely has been some improvement….we shall see how it goes.

But for my PV pruritis it is a godsend.

Rosie

william-Indo profile image
william-Indo in reply to21Rosie

Terima kasih.

Saya akan mencoba BA segera

havashan profile image
havashan in reply to21Rosie

Hi Rosie, I just starting taking B-Alanine and it has had a dramatic effect on the reaction I was having to water and humidity (stinging, burning, pricking sensations). So far, I have had little or no reaction to taking a shower, which is a huge relief. I don't know why this isn't recommended by hematologists as a first line treatment for this problem. Do you still use it and has it continued to help you.

havashan profile image
havashan

HI William-Indo. I jus started using B-A and it has been a big help. The stinging, pricking sensations I was getting from water and humidity have gone away. I am mixing 1/2 tsp of BA in water and drinking it every morning. Have you tried it yet and, if so, is it helping you?

william-Indo profile image
william-Indo in reply tohavashan

hi Havashan,

I am not in BA now.

Still awaiting to see my doc prior before use it.

Happy to know it work for you

havashan profile image
havashan

Thanks for your reply. I have found that I need to take it at least 30 minutes before showering. The other day I showered about 15 minutes after taking it and got some stinging although not as bad as other times. Please let me know if you decide to try and if it helps you.

william-Indo profile image
william-Indo in reply tohavashan

thank you for sharing.

BA common advise by Australian Docs to treat itching for PV patient.

What brand of BA you are using...?

I will update when I take it too

havashan profile image
havashan

I'm using Nutricost Beta-Alanine a powdered form. 1 tsp is 3G. I got it from Amazon. What do the Australian doctors recommend? Do you live in Australia?

Not what you're looking for?

You may also like...

ITCHING and PV

I have had Polycythemia Vera for 11 years controlled with Hydrea 2xdaily, only my leucocyte count...
lucieboo profile image

Itching with PV

I usually getting bad itching after a shower etc, but this morning it started “for no reason”? And...
Yvette49 profile image

Hydroxyurea, PV and itching...

I am a 65 year old male.PV since 2012.Phlebotomies and aspirin only but since last week I...
Innessant profile image

PV and dreadful itching

Hi everyone, I am 4 weeks into having interferon injections, I had my last one last week, I had a...
Yvette49 profile image

Ruxolitinib for PV

Are there many people on here who are taking Ruxo for PV in UK, how are you doing on it, are you...
ainslie profile image

Moderation team

Debinha profile image
DebinhaAdministrator
Mazcd profile image
MazcdPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.