Remember the trial I inquired about?: It’s a trial... - MPN Voice

MPN Voice

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Remember the trial I inquired about?

Barbiebreath profile image
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It’s a trial for Rusfertide. Here is a little of what they sent me. They called me today too. Its done in Southern Florida and there would be several visits. It is supposed to lower HCT so less phlebotomies are needed. (I think.) To keep iron up- I guess. Ep Guy? Hunter? What can you tell me?

The several visits would be difficult for me. They did say that they might be able to reimburse for travel though.

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EPguy profile image
EPguy

This is the phase 3 study for Rusfertide.

In the US it's avail in the areas listed below. Here is the site of the study, which they could have offered their link to look more trustworthy: (note the same 250 patients to be enrolled in the study and the text you got)

clinicaltrials.gov/show/NCT...

Rufs is an improvement over PHLB since it is supposed to control iron better, here is phase 2 results:

<<Rusfertide Eliminates Need for Phlebotomy, Reverses Iron Deficiency in Polycythemia Vera>>

onclive.com/view/rusfertide...

But if one needs other blood counts controlled, (PLT, WBC) other therapies need to be added. One use for Rusf I look fwd to is adding to INF for when HCT is not responding well enough while WBC is going too low.

It's good news to see the phase 3 for real so we may get approved access in the reasonable future.

--

United States, Florida

BRCR Medical Center Recruiting

Plantation, Florida, United States, 33322

Contact: Jason Tache, MD

United States, Maryland

American Oncology Partners of Maryland PA (Center for Cancer & Blood Disorders) Recruiting

Bethesda, Maryland, United States, 20817

Contact: Victor Priego, MD

United States, Nevada

Cancer Care Specialists Recruiting

Reno, Nevada, United States, 89511

Contact: Subramanyeswara Arekapudi, MD

United States, Ohio

Gabrail Cancer Center Recruiting

Canton, Ohio, United States, 44718

Contact: Nashat Gabrail, MD

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