Daisy-May : Has anyone taken something for... - MPN Voice

MPN Voice

10,519 members14,521 posts

Daisy-May

Daisy-May profile image
26 Replies

Has anyone taken something for constipation while on HU not sure what to take..

Written by
Daisy-May profile image
Daisy-May
To view profiles and participate in discussions please or .
26 Replies
Mostew profile image
Mostew

Are you having lots of water throughout day. ? Did you have a problem before HU ? I have 300ml with tablet as well

Natural things such as physilium , flax and magnesium are worth trying.

Ayurvedic Triphala powder

Don’t eat when stressed … stress can cause constipation …….

Daisy-May profile image
Daisy-May in reply to Mostew

Thank you for your reply I didn't have constipation before HU I drink water but not as much as I should I will drink more maybe that's the problem.. I have porridge and ground flax seed for breakfast..

Mostew profile image
Mostew in reply to Daisy-May

Maybe a tablespoon twice a day .. I find if I’m not relaxed it can effect bowels. Because starting HU can be so daunting maybe part of reason ?

Have a flask of ginger and warm water to hand and have regular sips

As well

Daisy-May profile image
Daisy-May in reply to Mostew

Thank you so much you are so right I have been feeling tense that could be another factor as well, I'm trying to avoid over counter medication for constipation if I can..

amhann profile image
amhann

Hello Daisy-May - I buy packs of soft dried figs + soft pitted dates - I have 1 fig + 3 dates after my main meal in the evening - that seems to work for me. Very best Anne-Marie x

Daisy-May profile image
Daisy-May in reply to amhann

Thank you so much Anne-Marie luv dates and especially figs I will give that a try seems a more natural remedy x 👋

hunter5582 profile image
hunter5582

HU made me extremely constipated. I used Miralax (Polyethylene Glycol) every day while I was on it. I also made it a point to have a piece of fruit every day. Fruit with higher levels of sorbitol (e.g. plums) work the best. When this was not enough, I would add a docusate tab (another osmotic) or sometimes a senna tab if i was really bad. I don't like the senna option as it forces peristalsis, but sometimes it is needed when you have chemically-induced constipation. There are some senna teas you can try for a gentler option.

I would suggest reviewing all of the meds you are taking. You can get a combination effect. When I was also taking Diltiazem, I was completely locked up. I had to take Miralax-docusate-senna every day. It was quite unpleasant. Do please check to see if your are taking something else that may be potentiating this adverse effect.

There are a couple of other things you can do that are based on why HU causes this adverse effect. As I understand it, HU can compromise your intestinal endothelium. It can also disrupt your intestinal microbiome. This means you need to support intestinal function the best you can. Taking a probiotic and foods with probiotics can help. So can including prebiotics in your diet. As others suggested, it is particularly important to stay well hydrated. Keeping up the fiber and other foods that support gut health is also helpful.

Hope you find relief soon.

Daisy-May profile image
Daisy-May in reply to hunter5582

Thank you so much hunter some really good advice there for me especially drinking more water and the probiotics which I sometimes have I have fruit smoothies but I will take your advice more of the other fruit like plums... 👍

Inca profile image
Inca

Prunes!!!! I live in S W France where they grow plums for prune produce exported all over the world. 12 yrs of P V ,Hydrea & now Rux they seem to work better than anything. Good Luck ..it's either one way or the other for us.😢

Daisy-May profile image
Daisy-May in reply to Inca

Thank you for your reply you are so right I think I'm going to try prunes nothing else seems to work at the moment yep it is one way or the other... Oooh living in France must be lovely...

moo196 profile image
moo196

additional fermented foods really helped with this. I added a small teaspoon of sauerkraut to every meal for a week or two.

Daisy-May profile image
Daisy-May in reply to moo196

Thank you for your reply I never thought of sauerkraut added to a meal I will give that a try 😉

moo196 profile image
moo196 in reply to Daisy-May

and anything else fermented. Live yoghurt is more palatable first thing in the morning.need to be every meal for a week or two

Daisy-May profile image
Daisy-May in reply to moo196

Thank you for reply I do have yoghurt I need to get the live one.. much appreciated 👍

Amethist profile image
Amethist

Vitamin C works wonders too. You take enough, over the day, to have a bowel movt. The amount for each person is different, as we all have a different bowel tolerance level. For example I can happily take 4to5 times the amount my husband can before I need to go. As a water soluble vitamin it’s very safe to take.

Daisy-May profile image
Daisy-May in reply to Amethist

Thank you for your reply vitamin C sounds good I will give it a go as I don't want to take over the counter medication 👍

gset profile image
gset

I have found having a spoonful or two of mixed seeds on my cereal or yoghurt really solved that problem for me, I take a mix of sesame, chia, flax, sunflower and pumpkin and they taste good too.

Daisy-May profile image
Daisy-May in reply to gset

Thank you for your reply I have ground flax seed but probably not enough I need to add more seeds like the ones you suggest 😀 many thanks..👍

william-Indo profile image
william-Indo

Take warm water 2 big glasses ever morning and wait at least half hour before breakfast

Daisy-May profile image
Daisy-May in reply to william-Indo

Thank you for your reply.. hubby told me to do that but did I listen (no) I will take your good advice and do that many thanks..👍

GarciaB profile image
GarciaB

Drink plenty of water, try Miralax. Safe and works well for me. I try to drink 5 quarts(6 liters) a day of water

Daisy-May profile image
Daisy-May

Thank you for your reply trying to drink more water find it hard though probably not been drinking enough.. 👍

ritaandscooter1 profile image
ritaandscooter1

I'm not on HU but have tortuous intestines so have been drinking a pack of metamucil every night.........does the trick! Kerry

Daisy-May profile image
Daisy-May in reply to ritaandscooter1

Thank you for your reply kerry I haven't heard of metamucil before I know what you mean about tortuous intestine it can be a nightmare I think it's the HU..

Borage profile image
Borage

Plenty of water, a daily walk, an assortment of fruit and vegetables daily, half a teaspoon of golden linseed on my breakfast porridge, and a glass of homemade kefir daily. No highly processed food.

Daisy-May profile image
Daisy-May in reply to Borage

Thank you for your reply.. I'm drinking more water and that's made a big difference I have ground flax seed and prunes in my porridge fingers crossed 🤞 everything back to normal 🙋‍♀️

You may also like...

BMB date arranged for 31 May

before then, I was wondering if anyone could give me some pointers of what questions I should have...

Bath Patients' Forum 3rd May

up for the patients' forum at Bath on May 3rd, anyone else coming ? (I hope so or else I'm going to...

COVID 19 Facts You may not know

Curiosity may kill the cat but I want to know.

showed mild fibrosis. What exactly does that mean to one with ET and does anyone else have this?

New Drug may be relevant to MF, ET

(PAH) Sotatercept, has just been approved. PAH is not a typical MPN worry, but it has side effects...