I am just checking in after a long gap. I joined this wonderful forum 6 years ago shortly after my PV diagnosis and was a regular reader and contributor here. In the early days I gained a better understanding of my condition by my questions on here and attended excellent informative days run by Maz at Christie’s in Manchester. I last wrote on here three years ago when I was at a very low ebb and shared my feelings with you as my husband Roger was suffering from multiple myeloma. The support and empathy from all who responded was very comforting to me.
Roger passed away in September 20. My devastation was immeasurable made many times worse by the restrictions of lockdown. A funeral with limited numbers, where no one could shake my hand or give me a hug was tough. I could write forever on the inefficiencies of organisations at that time with whom I was single handedly dealing and if I started on DVLA I could bore you to tears.
Life has changed for me and now on the whole I feel that I am making some slow progress. My background as a counsellor/psychotherapist has helped me to really understand and to be honest with myself and others regarding my feelings. I very much realise the importance of my self care.
Recently I have been reading the odd post on here and now I feel ready to be part of this wonderful group again.
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Fionnuaghla
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I would just like to welcome you back again. After reading your post it’s understandable that you took some time out, sometimes we need that.
I’m so sorry to hear of the passing of your husband Roger, and the attributable impact lockdown must have had. It’s good that your work background has made you aware of your own self care. Glad you’re back!
Welcome Fionnuaghla ,I remember you name & that you were part of this forum. Sorry you have had such a sad & difficult time. Lock down made life so much worse for everyone & more so losing a loved one. Good for you trying to get back to your life.
Wishing you all the very best for that & for taking care of yourself .e hugs.x
You can see I am no longer as familiar with this site. I inadvertently sent a reply intended for Superwoman to you. Thank you and please excuse my mistake.
Afternoon Fionnuaghla, Oh so sorry to hear about your husband Roger passing these last couple of years have certainly got a lot to answer for a sad time for many like yourself, even my own daughter was diagnosed with a rare cancer in 2020 Parosteal Osteosarcoma, had her thigh bone removed to it, although she came through the op successfully and they told her all had been removed, only to find out it had gone to her lungs, and it was not of supposed too as low grade cancer, she was able to get on a trial last December, but unfortunately she did not reach the criteria of 20% improvement so they took her off so you can imagine we are all devastated.So yes covid has a lot to answer for.
Hello and welcome back. I am sorry to hear about the passing of your husband. This has been a very difficult time to grieve the passing of a loved one amidst all the restrictions that the pandemic entailed. I hope the future will hold many real hugs for you. For now, virtual hugs will have to suffice.
Hi, Fionnuaghla, welcome back to our site. I too am very sorry to hear about the passing of your husband and the difficult time you’ve been having. I’m just glad you’re reaching out again for support from this group. They’ve always been so helpful to me.
I am fairly new here so I have not "met" you yet! But I want to say I am sorry to hear of the struggle that you have been going through with your husband and then the loss of him! A very trying time. Especially as you say during the lockdown and no physical contact that is so important when you already feel so alone and vulnerable. Sending you virtual hugs and praying you get lots of physical ones very soon!
So sorry to hear of your sad loss. All I can suggest is that you take your time and certainly don't expect too much of yourself because you are a psychotherapist. Nevertheless, I hope that your work will force you to focus on other things from time to time and give you a little respite from the pain.
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