I’m new here!

[Barbiebreath]

Hello,

I’m happy to have found this site. It’s already been helpful to read everyones experiences. I don’t feel so alone.

Since my Polycythemia Vera diagnosis- My only symptom is some itching at night and “maybe” some fatigue.

I’m sorry we all have this… but I’m glad you’re there!

[Hidden]

So am I. I'd never heard of this condition before today, so my diagnosis was something of a shock. Still, better than the leukaemia it could have been....

[Mazcd Partner MPNVoice in reply to Hidden]

hello mrsredboots, and welcome to you as well, as per my reply to Barbiebreath, very pleased that you have found us, and hope that it will help you to be part of this community. With best wishes, Maz

[Mazcd Partner MPNVoice]

hello Barbiebreath and welcome to our forum. I am glad to know that you have found it helpful to read the posts and experiences of the other members, we all understand how you are feeling being newly diagnosed, which can be very daunting. We have a lot of information on our website, mpnvoice.org.uk which will help you as well, so have a look. We are all here to help and support you. With best wishes, Maz

[hunter5582]

Hello and welcome. You found the right place to be to get support and information. I see mrsredboots just answered and is in the same situation as you. We have all been there ourselves. I just posted an answer to her that I hope you find useful.healthunlocked.com/mpnvoice...

All the best.

[Wyebird]

Good glad to be of service. I like it when some posts are what would seem to be a trivial matter to others but not us. You soon find out that the issue is quite wide spread and you have lots of advice given.

[Melior]

Hello Barbiebreath we share similarities in age and stage of diagnosis - I was diagnosed in November 21 and like you -I felt alone. Like you I have very few symptoms and am currently being treated by venesection and aspirin. I have found this forum really useful and comforting seeing how people can live full lives with PV. I was allocated a buddy by Maz and the buddy was great. There support together with some counselling provided by my employer means I have made a positive start in accepting my PV.

[Barbiebreath in reply to Melior]

I’m so glad you are feeling better about things. I go back and forth but mostly am doing better as well. 🙂 It really does help to not feel so alone. Thanks for reaching out