Great results from Mylofibrosis clinical trial.

[Magentas]

I’ll add another photo in the comments if I can. It’s one that mentions what she’s been taking. But if that doesn’t work you can just go to Facebook and search MPM Australia New Zealand.

Really hope this helps MF sufferers!

[Magentas]

Posted in her comments-

Clinical Form

[pj1963]

Very interesting. Thank you for posting.

[Stripecat]

That’s great to hear! Did you have to have extra bone marrow-biopsies?

[Magentas in reply to Stripecat]

Hi, I am not the person involved but you can join the Facebook page and ask the participant herself, Jennifer Earnshaw, I’m sure she will be happy to answer any questions you have. You probably won’t have to scroll down very far before you see her post. Best of luck!

[EPguy in reply to Magentas]

I don't have FB account, but if there is a link for more info that comes up, I hope to see.

[Magentas in reply to EPguy]

Anything I come across I’ll share for sure. I have too much going on at the moment so it is difficult to do a lot of things. Have you transformed to PV?I hope not, you were ETguy is that right?

[EPguy in reply to Magentas]

Thanks for the honest answer. You're right that there's no such thing as "I don't have time" There's only "I have priorities". We could not function without them.

For me and many of us, our MPN is way up there.

[Magentas in reply to EPguy]

Ah, I just read your post re your profile name.

[EPguy in reply to Magentas]

Thanks. I hope that explains.

[FG251]

Marvellous - nothing like good MPN news to start the day. Keep us posted!

[Magentas in reply to FG251]

I certainly will, I thought I had MF myself but luckily it got downgraded but I understand completely how horrible it is, so wanted to share this with the good folks here who are in that boat.