Letter from haematology : I received this letter... - MPN Voice

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Letter from haematology

LRH77 profile image
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I received this letter from my haematology dept this week, it's not relevant to me as I am not having any of these treatments, but thought some of you on here may benefit from this information.

Obviously this is the advice from my team in Devon, UK; it may be different in other countries.

All the best to everyone

Lucy

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LRH77 profile image
LRH77
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2 Replies
JediReject profile image
JediReject

Hi Lucy - Many Thanks for sharing this information. I know theres been quite a bit put out over the past 18 months and more recently. I'm fairly sure in what I've read and this letter confirms it that in the case of Transplant it's within the last 12 months. Fair enough. So as mine was 6 yrs ago I'm well outside the timescale.

However your letter states that anyone with Active GVHD is within the scope, which I do fall into and I don't think I've seen that before. So I would be eligible for the antivirals if required which could be a game changer. I hope I don't need to find out !! .

Chris

trotty100 profile image
trotty100 in reply to JediReject

belatedly apologies I have received the letter, also pcr test kit Christmas Eve, I am taking Ruxolitinib for myelofibrosis

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