Pv and sore fingers

[EleanorPV]

In the last 6 months I've developed sore fingers (may not be related to PV). They bruise easily when carrying anything. For the last 8 weeks I've had what looks like a haematoma within one of my small veins. This feels like a hard sore lump. My HCT is 41 (controlled with pagasys). I'm being referred to rheumatology possible vasculitis . I'll update you all once I have a diagnosis.

[mhos61]

I’m sorry to hear this. I hope it’s not vasculitis.

This maybe of no help, but there is a condition called ‘Achenbachs Syndrome.’ I came across this condition, as although rare, I sometimes experienced a really painful fingertip and watch it turn purple; it felt, and very much looked like a blood vessel had burst. Sometimes it happened after knocking it, or carrying heavy shopping, mowing the lawn etc.

I haven’t experienced it for years now, and wonder if it was connected to ET - which would have been undiagnosed back then; aspirin may explain why it has ceased too!

[EleanorPV in reply to mhos61]

Thanks for this. Sounds like what’s happening to me but my PV is controlled.

[mhos61 in reply to EleanorPV]

It may be unrelated to your PV. It will be interesting to see what the rheumatologist has to say. Keep us updated.

[hunter5582]

It could be a number of things. Do you get any other unexplained bruising?

Please let us know what you learn as we can all benefit form what you learn.

[EleanorPV in reply to hunter5582]

Finger remains the same. Lots of unusual bruising on my left leg (same side). Bloods on 29th sept then referral to rheumatologist.

[hunter5582]

I used to get excessive bleeding when on 81mg aspirin/day. I am now on 40.5mg/day and doing much better. I get symptom control without excessive bleeding/bruising. Note that as we age (age>60) our response to aspirin changes . We tend to bleed more.

Hope you get it all sorted out soon.

[EleanorPV in reply to hunter5582]

Yes closer to 60 for me (did I really admit to that haha). This may well be something to raise when I speak to a consultant.

[hunter5582 in reply to EleanorPV]

60 is in my rear view mirror. My doc told me that 65 is the new 35. Good doc!