New York Times article on MPNs: Apologies if this... - MPN Voice

MPN Voice

10,445 members14,398 posts

New York Times article on MPNs

Timjonze profile image
9 Replies

Apologies if this has been shared already - a really interesting story in the NYT written by a fellow MPN sufferer. She went through ET to PV and then MF and talks about how the disease being classed as a cancer has really helped fund research. She is currently on a very positive sounding phase two drug combo trial that appears to be reversing the fibrosis. nytimes.com/2021/03/11/well...

Written by
Timjonze profile image
Timjonze
To view profiles and participate in discussions please or .
9 Replies
cmc_ufl profile image
cmc_ufl

Thanks for sharing...great to read!

Cja1956 profile image
Cja1956

I just read the article and found it to be very interesting. Thanks for sharing.

ksos profile image
ksos

A friend saw this and just sent it to me -- she said it helped her understand my situation (ET) much better. Great to see this kind of coverage and thanks for posting it here. Kim

jmctrek profile image
jmctrek

Thank you for sharing this article. It gives me hope for the future of MPN research and helps me provide information for family/friends who are learning about our conditions.

Jonnymitts profile image
Jonnymitts

Thanks Tim.

Wally85 profile image
Wally85

Interesting reading - thank you for sharing

Bluetop profile image
Bluetop

A very positive story. thanks for sharing.

Magentas profile image
Magentas

Would like to know what the drug is, does anyone know? Maybe it’s Navitoclax or Fedratininb

patientpower.info/two-jak-i...

targetedonc.com/view/adding...

Mtnlife profile image
Mtnlife

My hematologist says the same thing. The reclassification of MPNs as cancer has opened up the funding for research.

You may also like...

Interesting research into new treatment for MPNs

Sounds like this could be promising - hope they get a trial organised soon! http://www.hcplive.com

New hope to cure patients with MPNs

the MPN. »...

Announcing a new monthly blog dedicated to young people living with MPNs

with some of the top tips she has learnt along the way to live with ET. She will have a blog...

living with MPNs day in London

firmly”Are you Chris Harper?” When I responded “yes” she said “If you had told us you would be...

2022 NCCN Guidelines for MPNs

our friends from the MPN Research Foundation. 2022 National Comprehensive Cancer Network...