Hi I have ET and Iam on hydroxy my worrie is I have been getting leg pain above my knee like a aching pain it comes and goes i am worried .

[Angeltwin]

Leg pain and ET

[Dovme]

Hi Angeltwin -it sounds like one of those things that you should get checked out by your Doctors especially if it’s worrying you

Best wishes to you!

[Angeltwin in reply to Dovme]

Thank you Dovme I will do ASAP as Iam self isolating as I have been in contact with someone who was positive for COVID 😱.

[Dovme in reply to Angeltwin]

Sorry to hear added stress! Perhaps call and they may give you a zoom appointment or a callback

[D1i2a3]

Hi I get leg pain in my legs all the time it’s like when you have the flu I’ve had ET for 8 years and MF for 4 years my doctor at the hospital said it’s part of ET. Hope you don’t mind me asking are you a twin ? I am my sister dosnt have it Diana

[Val_P]

Hi I get bone pain in my legs. It’s a bit like having a dull toothache all the time. My doctor prescribed zapain which does take the edge off. It’s worth discussing with your doctor x

[Mazcd Partner MPNVoice]

hi Angeltwin, sorry to hear that you are getting this leg pain, many people with MPNs do suffer with bone pains, however, it is always advisable to get it checked by your doctor, and I can see that Dovme has said the same, your doctor will also be able to advise you on pain relief or perhaps if necessary a referral to either the pain management clinic or a physiotherapist. If you have the contact details for your haematology nurse specialist you can also contact her/him for some advice on this.

Also I hope that you are ok with having to self isolate after being in contact with someone with COVID, what a worry for you.

I hope you get it sorted out and that you will be ok regarding the COVID. Best wishes, Maz

[Bluetop]

When I first started taking hydroxy I got some leg pain but rarely get it now -but I would certainly get it checked by a doctor if its worrying you -even if that is not done face to face. I hope you find it is nothing to worry about.